tag:blogger.com,1999:blog-30347428048000878632024-03-13T00:04:35.824-07:00Amazing GracieUnknownnoreply@blogger.comBlogger137125tag:blogger.com,1999:blog-3034742804800087863.post-27350064145984625512013-03-04T07:00:00.001-08:002013-03-04T07:00:24.015-08:00It's been 3 yearsIt's been 3 years since the day they did an ultrasound and found the tumor. I can't help but remember that day and the shock, fear, and anxiety associated with it. It was one of the worst days of my LIFE! I say one of the worst, because there were too many awful days ahead that I didn't know how my heart could take it without literally breaking in bits. What an amazing child we have. I can hardly bear to even remember what she has been through. The hard part is that she remembers it all. If you think about it, she was almost 4 at the time and that is kinda where people start to remember things anyway. especially as tramatic as that. We are so proud of our Amazing Gracie and SO beyond blessed and grateful to have her still with us and doing so well!!! <br />
I am still waiting to hear when her scan will be. They are waiting to get her old scans from TX and OK so they will be able to compare it with the old ones. We thank you for all your love and support these past 3 years. We are blessed to have you in our lives. <br />
Unknownnoreply@blogger.com4tag:blogger.com,1999:blog-3034742804800087863.post-47328091969789419712013-02-01T21:05:00.000-08:002013-02-01T21:05:09.174-08:0019 months post treatment<div class="separator" style="clear: both; text-align: center;">
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Gracie's first ski lesson<br />
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Gracie's first day of 1st grade<br />
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Gracie's 6th birthday.<br />
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Gracie is doing well and is growing and happy! She had a great summer and started 1st grade in the fall. She absolutely loves it! and she is a great student. We have moved and recently just took her to meet her new oncologist here. He seemed very nice and I am waiting to hear about when her CT will be scheduled. (It will be sometime this month) <br />
Gracie has had strep throat and a cold and cough this week so she stayed home from school. Every time she is sick at all, it makes her very tired because of her adrenal insufficiency (see: <a href="http://www.webmd.com/a-to-z-guides/understanding-addisons-disease-basics">understanding-addisons-disease-</a>) so when she is sick, she has to be on stress doses of hydrocortisone. She seems to be on the mend now, knock on wood. :)But please keep her in your prayers.<br />
A sweet story from this week. She was asking why she had to take this yucky medicine and I told her it was from the cancer ruining her adrenal function so she needs to take it when she is sick. she said "So I have to take this all my life? and pay for this myself when I.m older!?" I was surprised she had put that all together, I said "yeah" then she said "and adopt babies?" I was caught off guard cause we hadn't talked about that in the recent past. I said "does that make you sad?" and she goes "Heck no!! Like I want to hurt ever again... or be in the hospital!!" She was laughing and I did too. I said "I never thought of it that way" She is too sweet and cute for words. She understands so much and always has been wiser than her years. We sure love her and are so grateful for her continued health and progress!!<br />
I promise to post scan results as soon as we have them!! Unknownnoreply@blogger.com2tag:blogger.com,1999:blog-3034742804800087863.post-24264708628294661492012-06-15T22:23:00.000-07:002012-06-15T22:23:18.557-07:00One year post treatment!<div class="separator" style="clear: both; text-align: center;">
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Gracie last June</div>
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Wow! It is crazy to think it has been a year since Gracie finished treatment! sometimes it doesn't seem that long, and other times it seems much longer. When I think of all she has done in just a year it simply amazes me. to think where she has come from, and to see her now is nothing short of a miracle. We are so blessed to have her healthy and happy! Our Heavenly Father is so mindful of us. Our faith has played a major role in getting us through these past couple years. I don't know where we would be without our knowledge of the gospel and the power of prayer! Prayers are heard and answered, even when it's not the answer or time frame we have in mind. <br />
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We drove down to Ft worth on Sunday night and got there about midnight. Brandon was able to come with us this time and we brought all the kids. we stayed in a hotel and headed over to Cook's at 8:30 am. and got registered and all checked in. First up was the Ct scan, so she started on drinking the 2 hours of gatorade with contrast. We played on the new playground in the meantime. <br />
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They saw this wishing well that said "wish a child well" and she said "I am going to wish Briley well" She is always thinking about her.<br />
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waiting in the radiology waiting room. She sat on daddy's lap and even had him go with her to get the IV and scan. She adores her Daddy and it was fun to have him come and I was grateful to have his help.<br />
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after the Ct, she had and Echo and EKG done, then an appointment with endocrine and lastly an appointment with oncology. Dr. Granger could hardly believe her eyes! We are so grateful for Dr. Granger and the amount of love and compassion she has shown to us. She said this is why she does what she does and this kind of thing is what keeps her going. We would love to continue going to Cook's even after our move. we will have to see if our new insurance will allow it. Gracie has grown 2 inches in the last 3 months! She is playing catch up I guess. :) She is 43 inches and 42 pounds! Amazing. <br />
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Well, as you have probably fihured but now, the news is great! The scan was clear. No evience of disease. The day went smoothly even though it was busy! We were able to get into all appointments on time. After that we headed over to Seymour to visit Briley and her family. They cooked dinner for us and we had a nice visit, although it was much too short!! We hope to come back down for the curesearch walk in September! We thank you for continuing to pray for Gracie. Now we will only go for scans every 6 months. big sigh. :)<br />
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So, I haven't been on in 3 months and they have changed the blogging on me! sorry for the messed up pictures, I can't quite get them where I want them! lol. anyway, Im so sorry I never posted about her March scans!! Hopefully you assumed that no news is good news, as that is generally the case! and it is in this case also!! Her scans were clear once again and we are grateful! Gracie has enjoyed being in girl scouts and Kindergaten this year and has done really well. She got all dolled up to walk the red carpet for the 100th bday of girl scouts. That is the pic in the turquise dress. She looked like a princess :) also there are a few other pics of easter and selling cookies!The other picture is Chloe and I with our 10 inch ponytails we donated to <a href="http://www.childrenwithhairloss.us/">http://www.childrenwithhairloss.us</a> <br />
The picture below is when we were sitting in the car waiting for Chloe's piano lesson, and we found her hair that he had saved from when she first started chemo. My mom had wrapped it in a paper towel and it has been in the console ever since. She held it up to her head and it is the exact same color as before! Later that same day, she lost one of her top front teeth by taking a bite of a doritos locos taco! She lost the other top tooth about a week later. She is so cute with her little toothless grin. <br />
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This is an outfit our friend Michelle bought in Europe. She is always traveling and sending Gracie fun things!! Gracie loves to wear it and even wore it to church today! She dances around like a real spanish dancer. We looked up videos on youtube of spanish dancers. :)<br />
Gracie is doing well and will graduate Kindergarten on Wednesday!!! What an amazing year it has been post-treatment. She goes for her 1 year post treatment scans next month! We are planning on stopping to see Briley since we will be moving at the end of June. Also, Briley was in an awful car accident with her brother and Grandmother last week. Her grandmother died instantly and Briley suffered two broken femurs and a broken pelvis. She was able to go home from the hospital yesterday after 9 days in the hospital. She will be in a wheel chair for a couple months. please pray for her and her family and donate if you can!! <a href="http://www.teambriley.blogspot.com/">http://www.teambriley.blogspot.com</a> <br />
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjWoNbvgih4K1u-8DP5X7PofqIfvPzUaicPJ1jzBqVKl0gC7dg_p__NePMjiMzRRSTo-Vm5IXzHpStEzgwXPZRQMIOEUH9xOENOrZWTFH9YyhwSqizGAdteYyiIYeLnWc1YiyxgiWPnmhM/s1600/img_6878.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjWoNbvgih4K1u-8DP5X7PofqIfvPzUaicPJ1jzBqVKl0gC7dg_p__NePMjiMzRRSTo-Vm5IXzHpStEzgwXPZRQMIOEUH9xOENOrZWTFH9YyhwSqizGAdteYyiIYeLnWc1YiyxgiWPnmhM/s320/img_6878.jpg" width="239" /></a></div>Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-3034742804800087863.post-80321152990225270812012-02-25T20:52:00.002-08:002012-02-25T21:04:13.345-08:00February Fun<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjV2exgsukZCOaB8UEmQYEx_6Q7uLb9eyInOJ0_fUIL_3xWmNH-oWC0bdo6pFQ3hwOTHVUx8V17HS1RfBBDd7Buwqtp2ObKz9AAqxEFwiq8f1tBTAbO8yMioqcRn31J3lrJAriyBcZc6Tc/s1600/img_5944.jpg"><img style="margin: 0px auto 10px; width: 299px; height: 400px; text-align: center; display: block; cursor: pointer;" id="BLOGGER_PHOTO_ID_5713303938464193202" border="0" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjV2exgsukZCOaB8UEmQYEx_6Q7uLb9eyInOJ0_fUIL_3xWmNH-oWC0bdo6pFQ3hwOTHVUx8V17HS1RfBBDd7Buwqtp2ObKz9AAqxEFwiq8f1tBTAbO8yMioqcRn31J3lrJAriyBcZc6Tc/s400/img_5944.jpg" /></a>We took a family trip to Colorado for skiing. Gracie hadn't been feeling very well a few days before, and decided to just play in the snow, and not ry skiing. no problem with me! I was perfectly happy to stay with her and Von. :) I only tried skiing once 10 years ago and i was very bad at it. maybe next year :) well, she loved the snow! We had a great time.<br /><div><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgHOJjv8aftRJw2Fqb00LF5Qy3_lIxNIRC78KlCMbZbigxHsqqtCCx5JSsX40l088Cxyyi5qx2EXrpcLpXa_WW96yZwAlTXkTfHfMXGEZwWk8XLv7HmPwVSuOzPcHN6DdP9mZa6FSF9M80/s1600/img_5973.jpg"><img style="margin: 0px auto 10px; width: 299px; height: 400px; text-align: center; display: block; cursor: pointer;" id="BLOGGER_PHOTO_ID_5713303939173794978" border="0" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgHOJjv8aftRJw2Fqb00LF5Qy3_lIxNIRC78KlCMbZbigxHsqqtCCx5JSsX40l088Cxyyi5qx2EXrpcLpXa_WW96yZwAlTXkTfHfMXGEZwWk8XLv7HmPwVSuOzPcHN6DdP9mZa6FSF9M80/s400/img_5973.jpg" /></a>i love this picture of her laying in the snow, she was so happy and making a snow angel.<br /><div><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgfgZ5iYYo2pD4PlHEgdANvGlYn9VyvEi9OBdB1KsolaoJihkxh-JI3_bN4u_D9qjV2-0yyLotLjkPaxejma6HFfjd3ud9m-VH94vsQS8H5XbP19dfwkwBCipF08KdU28Y_aMY7jJvfwiA/s1600/img_5929.jpg"><img style="margin: 0px auto 10px; width: 295px; height: 400px; text-align: center; display: block; cursor: pointer;" id="BLOGGER_PHOTO_ID_5713303928701266578" border="0" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgfgZ5iYYo2pD4PlHEgdANvGlYn9VyvEi9OBdB1KsolaoJihkxh-JI3_bN4u_D9qjV2-0yyLotLjkPaxejma6HFfjd3ud9m-VH94vsQS8H5XbP19dfwkwBCipF08KdU28Y_aMY7jJvfwiA/s400/img_5929.jpg" /></a>Gracie at her Kindergarten class valentine party.<br /><div><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhtND756ne1WH4F655g-ob5lsvDYVu8TD6KxVTkYwvrbs7Z3ysaM91dFKSGquTi-__In1q5bHTqJs0_Ifjug8mXgBEqZJS9PirIulljMdJnS76Z707ED5Lnr84uOCwvDOXoKDbImUascL8/s1600/img_5876.jpg"><img style="margin: 0px auto 10px; width: 299px; height: 400px; text-align: center; display: block; cursor: pointer;" id="BLOGGER_PHOTO_ID_5713303929148516098" border="0" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhtND756ne1WH4F655g-ob5lsvDYVu8TD6KxVTkYwvrbs7Z3ysaM91dFKSGquTi-__In1q5bHTqJs0_Ifjug8mXgBEqZJS9PirIulljMdJnS76Z707ED5Lnr84uOCwvDOXoKDbImUascL8/s400/img_5876.jpg" /></a>Gracie and Chloe at the girl scout slumber under the sea. She wasn't feeling very well this day either, so she just stayed a couple hours.<br /><div><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi3RyQrmrw_Pfwq-_0ODJ2zF8tvyAllFPV5dcGB28od8xGiusBr55d9cdIF-e6zuqr_jLiNetS7yf5eAH91wIw7H5Cm9jvqWMFZ6je_E_OGdFVHQj7UWxkHIIFWg18xa2H7u3vPOzhi-mk/s1600/img_5873.jpg"><img style="margin: 0px auto 10px; width: 299px; height: 400px; text-align: center; display: block; cursor: pointer;" id="BLOGGER_PHOTO_ID_5713303922312986866" border="0" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi3RyQrmrw_Pfwq-_0ODJ2zF8tvyAllFPV5dcGB28od8xGiusBr55d9cdIF-e6zuqr_jLiNetS7yf5eAH91wIw7H5Cm9jvqWMFZ6je_E_OGdFVHQj7UWxkHIIFWg18xa2H7u3vPOzhi-mk/s400/img_5873.jpg" /></a>Gracie had some back pain earlier on this month that was intense and lasted 8 straight days, it just went away after that. we had an MIBG scan done to check for neuroblastoma but it was clear, thankfully. then she has had random times of pain and puking. It seems to be related to the adrenal insufficiency. she does a lot better, once she gets the hydrocortisone. We go back for her 9 month scans next month.<br /><div></div></div></div></div></div>Unknownnoreply@blogger.com3tag:blogger.com,1999:blog-3034742804800087863.post-18058403402389715632012-02-25T20:38:00.002-08:002012-02-25T20:52:14.324-08:00December scans and Christmas<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiTAROGUW-N0AzjE3rU4F-znhAbtS3JodX-zT-xCGQJW0eowloyofCITxTSLBm2hf4lFOSC4i7gLvNx2Fx3Ifb0A7GumRptnhQlOygTZkM1_CIlWLGNny8QPJBrpZDAe7wVFv_9wdyVFEg/s1600/img_5683.jpg"><img style="margin: 0px auto 10px; width: 299px; height: 400px; text-align: center; display: block; cursor: pointer;" id="BLOGGER_PHOTO_ID_5713299967675929426" border="0" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiTAROGUW-N0AzjE3rU4F-znhAbtS3JodX-zT-xCGQJW0eowloyofCITxTSLBm2hf4lFOSC4i7gLvNx2Fx3Ifb0A7GumRptnhQlOygTZkM1_CIlWLGNny8QPJBrpZDAe7wVFv_9wdyVFEg/s400/img_5683.jpg" /></a>Gracie's hair is long enough for french braids. I'm not the best at it, but it is cute enough :) she loves it.<br /><div><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgDTofPPSaSZ8pSNFRislBI65K4PPD_5faJokbOynue6QL4LdDJAFl__U6qNsCaPLioLdWoJtAPuGE0pTjZAIfWEIe80CJKevD5o3B74qHC33VRouFEQKRYMjztnkH-Jsha8pel86aLCBg/s1600/img_5634.jpg"><img style="margin: 0px auto 10px; width: 299px; height: 400px; text-align: center; display: block; cursor: pointer;" id="BLOGGER_PHOTO_ID_5713299960575822098" border="0" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgDTofPPSaSZ8pSNFRislBI65K4PPD_5faJokbOynue6QL4LdDJAFl__U6qNsCaPLioLdWoJtAPuGE0pTjZAIfWEIe80CJKevD5o3B74qHC33VRouFEQKRYMjztnkH-Jsha8pel86aLCBg/s400/img_5634.jpg" /></a>Gracie had a wonderful Christmas and was happy and healthy. She got a new baby and vanity, a play ironing table and lots of other fun stuff! We felt so blessed to be together as a family and everyone was healthy and happy.<br /><div><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgaYyRVKCqFy_ijR_VwZH-NpdAeSf0FUzJtXTWaj0RxUKWPNK2zzwscXNioEK5RSMy10c6_cXp58I30UNJxO6URndEcgt7f-BPG6fMR2wasLMUgcVO2TP8uyOpOUv-fC-jQJLgIp6d44VA/s1600/img_5558.jpg"><img style="margin: 0px auto 10px; width: 300px; height: 400px; text-align: center; display: block; cursor: pointer;" id="BLOGGER_PHOTO_ID_5713299954743845346" border="0" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgaYyRVKCqFy_ijR_VwZH-NpdAeSf0FUzJtXTWaj0RxUKWPNK2zzwscXNioEK5RSMy10c6_cXp58I30UNJxO6URndEcgt7f-BPG6fMR2wasLMUgcVO2TP8uyOpOUv-fC-jQJLgIp6d44VA/s400/img_5558.jpg" /></a>We went down to Fort worth for her scan and Dr appointment. I took all the kids, since we had to stay overnight. We went to radiology at 8 am and she started the 2 hours of drinking the gatorade contrast. The other kids were all great waiting. They had to do an IV for the CT and they left it in for later that day for labs with the endocrine office. They were testing her cortisol levels. They came back as low but not too much. The doc said she didn't need daily hydrocortisone, but would need stress doses when she was sick. The CT scan was clear! It is always a huge relief, although we hadn't anticipated anything different since she is doing so well. :) We had the clinic appointment in the afternoon and made it back home around 10 pm.<br /><div><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjFk4b9jc7wRD2qFglJ-98_WqqXelsE2TOJVesPCRqrNunukS7epm1Z7U3Es-DUOs6NLGlgtQzU5LpzVxEf_HHqMWhD_DPuLKAs6nD-Z9HkpNGAq-RHqI8xlhHaKW61E2eRRl7UpR1Dwu4/s1600/img_5534.jpg"><img style="margin: 0px auto 10px; width: 299px; height: 400px; text-align: center; display: block; cursor: pointer;" id="BLOGGER_PHOTO_ID_5713299936665394690" border="0" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjFk4b9jc7wRD2qFglJ-98_WqqXelsE2TOJVesPCRqrNunukS7epm1Z7U3Es-DUOs6NLGlgtQzU5LpzVxEf_HHqMWhD_DPuLKAs6nD-Z9HkpNGAq-RHqI8xlhHaKW61E2eRRl7UpR1Dwu4/s400/img_5534.jpg" /></a><br /><div><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhSbp0stRHNx_dMScWvZ7YVdjosAkgVtZj3XttJx7t7osBikP5jP2YNlOOqpAJdvRYZRVKY5JbDWu7PS501REkSRGhp6fDa_8YVGBzAaSPFjtXXiwuSn8dsFWr46-htyGSVKBIRUZbR9ps/s1600/img_5531.jpg"><img style="margin: 0px auto 10px; width: 299px; height: 400px; text-align: center; display: block; cursor: pointer;" id="BLOGGER_PHOTO_ID_5713299932312557746" border="0" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhSbp0stRHNx_dMScWvZ7YVdjosAkgVtZj3XttJx7t7osBikP5jP2YNlOOqpAJdvRYZRVKY5JbDWu7PS501REkSRGhp6fDa_8YVGBzAaSPFjtXXiwuSn8dsFWr46-htyGSVKBIRUZbR9ps/s400/img_5531.jpg" /></a><br /><div></div></div></div></div></div>Unknownnoreply@blogger.com1tag:blogger.com,1999:blog-3034742804800087863.post-68573753663774912602012-01-29T10:41:00.000-08:002012-01-29T10:52:20.663-08:00Halloween and other fun<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhqibzwlR9G_tO-x4XOOcfGjKs2rWDOXMlZSDjLwRC0tnmXw2J_ofOSDW36ntCoGXsEOpLyXIasPWbqAHo-_ZV2J-6DHcZExOcGcBPzk-Hp8Di2OT1unMc_MVbYkR3wDhuj9IljHZQgmKY/s1600/img_5177.jpg"><img style="margin: 0px auto 10px; width: 299px; height: 400px; text-align: center; display: block; cursor: pointer;" id="BLOGGER_PHOTO_ID_5703127633173204610" border="0" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhqibzwlR9G_tO-x4XOOcfGjKs2rWDOXMlZSDjLwRC0tnmXw2J_ofOSDW36ntCoGXsEOpLyXIasPWbqAHo-_ZV2J-6DHcZExOcGcBPzk-Hp8Di2OT1unMc_MVbYkR3wDhuj9IljHZQgmKY/s400/img_5177.jpg" /></a>Gracie was a ladybug for halloween! she looked so cute! she had a great time trick or treating.<br /><div><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgEjE9CLDxN8XGvYkcZB1IE8u5FsrWMC5FLft8maIqkxVu_CcMGMyEq_cTMK3uhXO4BIDI_Sk9NLBuiPu7Nhwdeux69QrLgGfuzMAG4ZPIB-wfMYTubSDA_pf4QcunGcY0v8dKyRTF7MEs/s1600/img_5176.jpg"><img style="margin: 0px auto 10px; width: 299px; height: 400px; text-align: center; display: block; cursor: pointer;" id="BLOGGER_PHOTO_ID_5703127628672071954" border="0" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgEjE9CLDxN8XGvYkcZB1IE8u5FsrWMC5FLft8maIqkxVu_CcMGMyEq_cTMK3uhXO4BIDI_Sk9NLBuiPu7Nhwdeux69QrLgGfuzMAG4ZPIB-wfMYTubSDA_pf4QcunGcY0v8dKyRTF7MEs/s400/img_5176.jpg" /></a>we went to the church trunl or treat a couple days before halloween and it was a little cold that day, so she wanted to wear her warm butterfly costume from last year. <a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgvU0w5XxC38h7NZzxaRuLwUds7UFfMlq_fjYJMadJsJyDgXvgyHtIORHTJ_FJhXC0p9aBy8BD8bmAKIL8VzVNGR19NiTc842Pfd7g9kl_uy23Bkcc8cuglYpbAgY5S3FwMHJ3bgY0n7tA/s1600/img_5122.jpg"><img style="margin: 0px auto 10px; width: 299px; height: 400px; text-align: center; display: block; cursor: pointer;" id="BLOGGER_PHOTO_ID_5703127612556260466" border="0" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgvU0w5XxC38h7NZzxaRuLwUds7UFfMlq_fjYJMadJsJyDgXvgyHtIORHTJ_FJhXC0p9aBy8BD8bmAKIL8VzVNGR19NiTc842Pfd7g9kl_uy23Bkcc8cuglYpbAgY5S3FwMHJ3bgY0n7tA/s400/img_5122.jpg" /></a>Gracie at daisy scouts.<br /><div><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgnW_rGj4AMpwhyEN-j3yVc4iNBIyKPP6PNB4dBWFQcE1bhTtT8MEewSgk8Julpk1tCDP77obuR0cgVuEnM9_Sw-7X9XuAg9rT79X26HjTymYyIEMjrm5hrFjcHMtFt_WiCNdTgB9oIPCM/s1600/img_5115.jpg"><img style="margin: 0px auto 10px; width: 361px; height: 400px; text-align: center; display: block; cursor: pointer;" id="BLOGGER_PHOTO_ID_5703127605870671186" border="0" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgnW_rGj4AMpwhyEN-j3yVc4iNBIyKPP6PNB4dBWFQcE1bhTtT8MEewSgk8Julpk1tCDP77obuR0cgVuEnM9_Sw-7X9XuAg9rT79X26HjTymYyIEMjrm5hrFjcHMtFt_WiCNdTgB9oIPCM/s400/img_5115.jpg" /></a>On the swing, when we went camping in October with friends. The weather was perfect and we had a great time!<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg5XYQ9j8rn70PDlF521vYYDm4aC955ztz1tXDnfEIUN0_o_LarfjbjhJLp02wGR2Jj5_eMA0sG7Adw32am5dp6CTrAyxaphdAwXN_B_cdmVYpLIRWprJ-fQTcKU9dB9ULcHi5wv1dVkaM/s1600/img_5077.jpg"><img style="margin: 0px auto 10px; width: 299px; height: 400px; text-align: center; display: block; cursor: pointer;" id="BLOGGER_PHOTO_ID_5703127608150448770" border="0" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg5XYQ9j8rn70PDlF521vYYDm4aC955ztz1tXDnfEIUN0_o_LarfjbjhJLp02wGR2Jj5_eMA0sG7Adw32am5dp6CTrAyxaphdAwXN_B_cdmVYpLIRWprJ-fQTcKU9dB9ULcHi5wv1dVkaM/s400/img_5077.jpg" /></a><br /><div></div></div></div>Unknownnoreply@blogger.com3tag:blogger.com,1999:blog-3034742804800087863.post-46089346691321046832012-01-29T10:27:00.000-08:002012-01-29T10:41:03.087-08:00more disney pics<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgiITeGzIJueJE_ToUjQ4d9m_afWuBBhCm97MRQm8Dr5SWejR-ovKtEYAOacy9kNtrAtMma_KMb4N2hmmeuvN_XNIdOdTd_xeZS5kI-4RU6Rm5bh-clbLTX5Q8pT7ZBrkdsn4LaD4q7b2w/s1600/Photo0183FourBySix.jpg"><img style="margin: 0px auto 10px; 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width: 400px; height: 300px; text-align: center; display: block; cursor: pointer;" id="BLOGGER_PHOTO_ID_5702860343925358898" border="0" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjF9E6eHlxG46uD99KLAWMogljH9cSBr2LBEHMYvgt_3qMbucW4nLaPzqfERGByrrnS6fZKprSXdkLrH1mbjfs5ZBmp6Cnc_WKvZC0pnBUbPgTdxlZp14QxorfG0PZpmekLAJx7UVZjPs4/s400/img_4620.jpg" /></a><br /><div><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgDdHrk5Y8GVKQI922wLF9pkKeXxPoE03ghiloxw0_gaooVEsPvtku1c9inOMTMhrAXKgbnyQgRpWsVBYYFIejSgtXdlepYi1EyUgNhgd42ZbedDg70K_RLon6LRmKkg2DoFUhZeHlyIKQ/s1600/img_4605.jpg"><img style="margin: 0px auto 10px; width: 299px; height: 400px; text-align: center; display: block; cursor: pointer;" id="BLOGGER_PHOTO_ID_5702860343348225250" border="0" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgDdHrk5Y8GVKQI922wLF9pkKeXxPoE03ghiloxw0_gaooVEsPvtku1c9inOMTMhrAXKgbnyQgRpWsVBYYFIejSgtXdlepYi1EyUgNhgd42ZbedDg70K_RLon6LRmKkg2DoFUhZeHlyIKQ/s400/img_4605.jpg" /></a><br /><div><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjmEvBgqnruQQASJY-JVkCbO6AE7gUKBtz6p97ytpMZx4g7aRyNAEQv7eIlTJQj49PfQ7ux0ECW-O0MK3AzH13A-Gmae0UEZbqR9-pFOI724Yr0YdGKKeeLK8Y3FSF3GXPG46h9kM4xwaA/s1600/Horses+%2528256%2529.JPG"><img style="margin: 0px auto 10px; width: 267px; height: 400px; text-align: center; display: block; cursor: pointer;" id="BLOGGER_PHOTO_ID_5702855237929021570" border="0" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjmEvBgqnruQQASJY-JVkCbO6AE7gUKBtz6p97ytpMZx4g7aRyNAEQv7eIlTJQj49PfQ7ux0ECW-O0MK3AzH13A-Gmae0UEZbqR9-pFOI724Yr0YdGKKeeLK8Y3FSF3GXPG46h9kM4xwaA/s400/Horses+%2528256%2529.JPG" /></a><br />We woke up at 415 and got Ready to go! We got to the airport at 510 and all<br />checked in by 540. The flight didn't leave til 715 so we had plenty of time. The<br />kids loved watching the planes. We hadn't flown in 5 years. (shad and brandon<br />went a couple years ago for hunting) The last time we flew all together was from<br />Watertown to salt lake for shaylas wedding and Christmas in 2006. Gracie was 5<br />months old. So this was her first time to remember it. She loved it and so did<br />Von. The flight went well and we arrived around 1215. After we got off the plane<br />there was a volunteer from Give kids the worlds with a sign that said Gracie.<br />She showed us the way to baggage claim and Avis car rental where they had<br />arranged a minivan for us and carseats. They gave us a map and told us how to<br />get to gktw. It was a 30 min drive from the airport and disneyworld is only 10<br />min from there:) when we got to gktw we were given a packet of info and told<br />where everything was. Gktw is a large area in and of itself with fun things for<br />kids. Games pony rides pools water fun movies etc. Plus free dining and ice<br />cream all day. U can even have it delivered to your villa. Our villa is really<br />nice. It is a 2 bedroom 2 bath with pull out sofa bed and rollaway bed. Kitchen<br />Lr and laundry room stocked with everything. We had some lunch and ice cream.<br />We unpacked and there was a note from mrs schaefer that she told me to put in<br />Gracie's suitcase since she had been telling Gracie to take her in her<br />suitcase. :) she said that way she really did come in her suitcase. Gracie<br />thought that was so funny. Mrs schaefer was pretty sneaky! Lol then we had the<br />kids take a little nap while Brandon went to the orientation. They were out like<br />a light within minutes despite their protesting beforehand of how "not tired"<br />they were! At orientation he got all the info and our attraction tickets. 3<br />days to Disney, 2 to universal studios, and 1 to sea world! She has a button to<br />wear showing that she is a wish kid and it gets her special things. We also got<br />a fast pass for the family to go to the front of the lines. Tuesday night we<br />spent at the pool and splash pad area. They were having a big splash bash BBQ<br />with games and cotton candy and snow cones. Shad got second place in the musical<br />hula hoops game. When u got out u got a bucket of cold water poured on your<br />head. Chloe got out toward the beginning. They all had a lot of fun. We went to<br />bed around 930 and woke up on wed at 730. We went over to the horse rides right<br />at 8 and the boys didn't want to but Chloe and Gracie did and loved it. They all<br />got a cowboy hat, although they only fit Gracie an Von. Lol . Then we had<br />breakfast and then rode the carousel at gktw. Then we headed to Disney at 9 for<br />a 10 o'clock appointment to meet the princesses. We thought we had enough time<br />since it is only 15 miles away but it was quite a process to get inside magic<br />Kingdom. We got there right at 10. Gracie loved seeing the princesses and giving<br />them a hug. They gave us a photo card that they scan and they have prof<br />photographers and they scan your card and u can get a cd of all the pictures of<br />your trip. Really neat. She met aurora, belle, and Cinderella at the first<br />place, and tinkerbell and vidia at another spot, and finally rapanzel at another<br />place. We were given a special pass that gets the whole gaily to the front of<br />the lines. That saved us an amazing amount of time. The place was crowded for<br />sure. We rode 5 rides in one hour. We rode a lot of rides, had lunch and dinner,<br />and then I took the girls tothe bibbidy bobbidy boutique for a makeover while<br />Brandon took the boys on another ride and then saved our seat for the parade.<br />They waited there for almost 2 hours, what good sports :) the girls LoVED the<br />makeover. They both chose to be belle and got a beautiful dress and their hair<br />and makeup and nails done. They will always remember it I am certain. It was<br />great. after that we watched the amazing parade and fireworks. That got over<br />around 930 and we didn't make it to the car til 11 because of how crowded it was<br />but we were glad we had stayed to watch. It was really cool. The kids did really<br />great for such a long day. we all finally got to bed at midnight and decided to<br />sleep in a little on Thursday. We woke up at 8 and I gave the kids baths and<br />then we went to breakfast and the carousel again at gktw. They also had some<br />Disney characters visiting to get pics taken with. The little ones especially<br />loved it. Von was so cute giving them all hugs! Except belle of course lol he<br />had no interest in seeing her. We headed out to universal studios at 1030. It<br />was much easier to get inside and much less crowded! Except the Harry potter<br />area! We rode some rides in the dr seuss area that were cute and fun. Then<br />headed to Harry potter area which was way crowded but really neat. The kids all<br />chose a wand at the wand store. We ate lunch there and all drank butterbeer in a<br />collectable mug. It was yummy. Then we rode some rides there and headed to the<br />Jurassic park area. After that we stopped by blahjhjkk for some treats. Then<br />rode the carosel and headed out. We decided to stop at the bathroom and Gracie<br />was running to catch up with Chloe and I and she tripped over some guys foot<br />and face planted it. I called to Brandon cause her nose was bleeding everywhere.<br />She got a big bruise on her knee and a knot on her forehead. She was mostly<br />concerned with gettin the blood off of everything, after she was cleaned up she<br />was back to happy. Brandon had mentioned the other day about her being pigeon<br />toed and she really is. I think we will have to do some physical therapy thanks<br />to All those months in a hospital bed : /we ate dinner at gktw and then went<br />swimming and shopping at the outlet mall. Friday we went to breakfast and<br />carosel at gktw again. Then we headed to epcot. The Nemo rides etc were pretty<br />fun. Then we went to Hollywood studios and had a lot of fun there. That night<br />They had a show called fantasmic and it was neat with lights and fire and water<br />and a lot of Disney characters and fireworks. We got back to gktw at 9 and<br />ordered pizza since we had an early dinner. Saturday we had breakfast and then<br />ice cream! The kids thought it was so cool that they let u get ice cream for<br />breakfast. After that we headed to the castle of miracles for Gracie to sign her<br />name on her very own star. Then the star fairy hung it up. Then we headed to<br />universal studios and had a lot of fun. They had a fun play area and also a<br />Barney show that the little ones loved. Try had a special meet and greet w<br />Barney for us and another little boy w make a wish after the show. We also saw<br />Dora and Diego. We went back to the Harry potter part and also dr suess area<br />that we liked the first time. Also jaws and Jurassic park and shrek 4D . That<br />night we went to a dinner show in Orlando called medieval times. We all really<br />enjoyed it. Sunday we woke up and ate breakfast and rode the carosel. Then we<br />headed to disneys animal kingdom. We rode a few rides and saw a couple live<br />shows. Te lion king and finding memo musical. The lion king was pretty cool but<br />none of us really cared for finding memo as a musical. It was kinda lame lol but<br />the costumes were good :) then we played at the Dino dig. We ate lunch in Asia<br />and it was really yummy. It was nice to have a different kind of food than the<br />norm.After lunch we were opening our fortune cookies and Gracie opened hers and<br />it said " you are brave and strong" when Brandon read it out loud I couldn't<br />believe it. It was too true :) the rest of us had lame fortunes but hers was<br />totally true! I was just looking at her and thinking that you'd never know what<br />she has been through just by looking at her. She looks so good and is doing so<br />good. we went on an African safari in Africa and it was pretty cool. We really<br />liked how we got to be so close to the giraffes. We came back to gktw for dinner<br />and one last swim and one last trip to the ice cream shop :) we had to buy two<br />new large suitcases to fit all the souvenirs and things we got. Good thing we<br />only came with 4 bags in the first place. Then we did laundry and packed<br />everything up so we could enjoy our last half day at sea world. <div><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiqZlDzXqYeCRmiAnoKymNYXqNO4Ge2Oa1aNGDogJRZ9kE0p7PO6EdLRhPMVeCsnAYP4s7LGXnLzYSLl8maXaRmy6GbSvpzMB_wncC_ge6hXc0MRdpBmVPDFfJH_LVBBnpzqYWhSslE_Xg/s1600/555244_Bloxham_ind.jpg"><img style="margin: 0px auto 10px; width: 400px; height: 300px; text-align: center; display: block; cursor: pointer;" id="BLOGGER_PHOTO_ID_5702855222661915890" border="0" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiqZlDzXqYeCRmiAnoKymNYXqNO4Ge2Oa1aNGDogJRZ9kE0p7PO6EdLRhPMVeCsnAYP4s7LGXnLzYSLl8maXaRmy6GbSvpzMB_wncC_ge6hXc0MRdpBmVPDFfJH_LVBBnpzqYWhSslE_Xg/s400/555244_Bloxham_ind.jpg" /></a><br /><div><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh-gIS0loTZVyicwW2EP_64Du7OTMG7eU3aH5lmmyS-M3yDD2oHGfHbzPB4C_eE6CMbTSgiY3_nAmHDYLVEoXpXCe-aOpP8RmeCrrpY-j7mRQsKWxBbzX3f3ndo53KhIcphD957xF9HOpU/s1600/285.jpg.JPG"><img style="margin: 0px auto 10px; width: 400px; height: 266px; text-align: center; display: block; cursor: pointer;" id="BLOGGER_PHOTO_ID_5702855225986402418" border="0" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh-gIS0loTZVyicwW2EP_64Du7OTMG7eU3aH5lmmyS-M3yDD2oHGfHbzPB4C_eE6CMbTSgiY3_nAmHDYLVEoXpXCe-aOpP8RmeCrrpY-j7mRQsKWxBbzX3f3ndo53KhIcphD957xF9HOpU/s400/285.jpg.JPG" /></a><br /><div><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg3eQwRgsAm1pZbJLmiyc3x3CLWulM45qXCaH1vbWZyzbWajorUzaoxdoxw8U1TQ0GtfSZwozVIzp92Ih0dd4a2A4tLVOh6K6S4O0dTTigKV5EleQ7kRpbc_j1vSDo8CmQ1DlQkQWj62yU/s1600/000_0001.jpg"><img style="margin: 0px auto 10px; width: 400px; height: 300px; text-align: center; display: block; cursor: pointer;" id="BLOGGER_PHOTO_ID_5702854155166175330" border="0" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg3eQwRgsAm1pZbJLmiyc3x3CLWulM45qXCaH1vbWZyzbWajorUzaoxdoxw8U1TQ0GtfSZwozVIzp92Ih0dd4a2A4tLVOh6K6S4O0dTTigKV5EleQ7kRpbc_j1vSDo8CmQ1DlQkQWj62yU/s400/000_0001.jpg" /></a><br /><div></div></div></div></div></div></div></div></div></div></div></div></div></div></div></div></div></div></div></div></div></div></div></div></div>Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-3034742804800087863.post-54132467905277521822012-01-28T16:36:00.000-08:002012-01-28T16:45:30.964-08:00Gracie's Disneyworld send off party!Ben and Natalie, Gracie's wish helpers, put together a send off party before disneyworld, where they gave us all our tickets etc. We ate at cici's pizza and invited some friends to join us. Then while we were eating, Cinderella walked in! Gracie had no idea this was going to happen! It was such a fun surprise! We ate and had cake and opened some gifts from the make a wish foundation and also Ben and Natalie. Mrs. Shaefer, her kindergarten teacher, also brought her a gift. We had a great time, and especially Gracie!<br /><div><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgqGtgsz8MHZA9kZw-eJWraNf2eQE63jLcaKwpzRPNnfBPWep15QNhvYS5rmP-bPpJNkvmrJWaqZJCS2Q1kg08tZZFH43eZY6f_esgC0cXzF0JBd2CfatsOFgdwAoh0F0AN3MgYspSjTdA/s1600/Gracie%2527s%252520Send%252520Off%252520Party%252520%252830%2529.JPG"> Gracie and Cinderella<img style="margin: 0px auto 10px; width: 400px; height: 265px; text-align: center; display: block; cursor: pointer;" id="BLOGGER_PHOTO_ID_5702847332975256098" border="0" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgqGtgsz8MHZA9kZw-eJWraNf2eQE63jLcaKwpzRPNnfBPWep15QNhvYS5rmP-bPpJNkvmrJWaqZJCS2Q1kg08tZZFH43eZY6f_esgC0cXzF0JBd2CfatsOFgdwAoh0F0AN3MgYspSjTdA/s400/Gracie%2527s%252520Send%252520Off%252520Party%252520%252830%2529.JPG" /></a><br /><div><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg93kEurwqIzbWAESDcbMb4-iEZMSHwPtfqReIuxP4s-Mb629eWaZ-FMHLjLqY6-fZ_gO0Dh3U634ayKOYRb2mtyCMpJwWjMBgJfuAMAWl5wFA8E_CO0zPcVKtiXrsTojvSCT_KCQggey4/s1600/Gracie%2527s%252520Send%252520Off%252520Party%252520%252831%2529.JPG"> Gracie with Ben and Natalie<img style="margin: 0px auto 10px; width: 400px; height: 265px; text-align: center; display: block; cursor: pointer;" id="BLOGGER_PHOTO_ID_5702847328411175170" border="0" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg93kEurwqIzbWAESDcbMb4-iEZMSHwPtfqReIuxP4s-Mb629eWaZ-FMHLjLqY6-fZ_gO0Dh3U634ayKOYRb2mtyCMpJwWjMBgJfuAMAWl5wFA8E_CO0zPcVKtiXrsTojvSCT_KCQggey4/s400/Gracie%2527s%252520Send%252520Off%252520Party%252520%252831%2529.JPG" /></a><br /><div><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg89Hsfya4T-4XBX73jw5yu1ctoIZ2g6Ezxz9GYjisxrCtpMy3Bxcon9wfWZdiCXtjr_2Po9HMCQAU7YWwN_DOWBQ6KZu4v_-b3hOOhpBdUzz9S6-SogI7ZBiCn4m69BPi9mc6xH2p3RPI/s1600/Gracie%2527s%252520Send%252520Off%252520Party%252520%252835%2529.JPG"><img style="margin: 0px auto 10px; width: 400px; height: 265px; text-align: center; display: block; cursor: pointer;" id="BLOGGER_PHOTO_ID_5702847319054376882" border="0" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg89Hsfya4T-4XBX73jw5yu1ctoIZ2g6Ezxz9GYjisxrCtpMy3Bxcon9wfWZdiCXtjr_2Po9HMCQAU7YWwN_DOWBQ6KZu4v_-b3hOOhpBdUzz9S6-SogI7ZBiCn4m69BPi9mc6xH2p3RPI/s400/Gracie%2527s%252520Send%252520Off%252520Party%252520%252835%2529.JPG" /></a><br /><div><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiuldvVeRzOeNX4pqxdLCNoQlcnId795GlQpHr6yf4bSH5pR8o8aRqMamnuBenF71lydjU4IaHy00yzu2SgltR675jWQgf_ODLtoHKCI1Z7krtF06jaYUX6C5EmJ2tQ0yyhexPawsFndcM/s1600/Gracie%2527s%252520Send%252520Off%252520Party%252520%252827%2529.JPG"> The whole family with Cinderella :)<img style="margin: 0px auto 10px; width: 400px; height: 265px; text-align: center; display: block; cursor: pointer;" id="BLOGGER_PHOTO_ID_5702847313826218834" border="0" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiuldvVeRzOeNX4pqxdLCNoQlcnId795GlQpHr6yf4bSH5pR8o8aRqMamnuBenF71lydjU4IaHy00yzu2SgltR675jWQgf_ODLtoHKCI1Z7krtF06jaYUX6C5EmJ2tQ0yyhexPawsFndcM/s400/Gracie%2527s%252520Send%252520Off%252520Party%252520%252827%2529.JPG" /></a><br /><div></div></div></div></div></div>Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-3034742804800087863.post-78878328769858482842011-10-05T16:30:00.000-07:002011-10-05T16:46:31.222-07:00ClinicYesterday we woke up at 3:30 am and made the drive to Ft Worth for Gracie's 3 month clinic visit. We had missed the appointment a couple weeks ago, and this was the next they had. It was to do labs and review the scan results. We already knew the scan results since we had called them, but we went so they could see her, since it had been so long! They were all simply amazed at how great she looked! They said they would have never recognized her on the street! :) First thing, was the scale, and it said 16.4 kg! we have never seen a 16! that translates to 36.08 pounds!! She has gained almost 7 lbs in 4 months, and all on her own! She hasn't had any feeds since July. Her appetite is great and she is active and getting stronger every day. Then she got the poke for her labs and she didn't cry. She just said "I'm scared, I'm scared" The labs were all wonderful and normal. all the chemistries and everything. It had been too long to remember since seeing so many numbers in the middle of the paper where they should be! After Dr. Granger saw her, she asked if we wanted to take the g button out that day. I asked how do they do it, and she said they just pull it out. Gracie was nervous, and I kinda was too. But she did really well. Dr Scully, from surgery came over and pulled it out, and she screamed a little. Blood spurted out and food from her stomach, from the force, it was kinda shocking, then he put pressure on it. He said to not eat for an hour and the mucosal lining of the stomach would heal itself by then. amazing. He said to leave the bandage on for 3 days. She had had that button since last July! 15 months. She is truly a free woman now. It is a huge deal and we know we are so blessed. We thank God every day.<br />Next adventure--Disneyworld!!Unknownnoreply@blogger.com1tag:blogger.com,1999:blog-3034742804800087863.post-70033001718588645242011-10-05T16:19:00.000-07:002011-10-05T16:28:07.643-07:00the state fair<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjkagjzDT7h_W3Xsw3MPdYZW7kSEHJfhXidqEZJfdF_IZ-crfsuUtJWw9kNRprmZDFrl4eiRddladRuortfsch430eplE3kWKsd8ITUZ1X47T0QfXVRPlXyC8vutSOIauKJJGN1ImbGYGo/s1600/img_4437.jpg"><img style="TEXT-ALIGN: center; MARGIN: 0px auto 10px; WIDTH: 299px; DISPLAY: block; HEIGHT: 400px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5660152790657012578" border="0" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjkagjzDT7h_W3Xsw3MPdYZW7kSEHJfhXidqEZJfdF_IZ-crfsuUtJWw9kNRprmZDFrl4eiRddladRuortfsch430eplE3kWKsd8ITUZ1X47T0QfXVRPlXyC8vutSOIauKJJGN1ImbGYGo/s400/img_4437.jpg" /></a> Last week, a package came in the mail from Gracie's wish granters, Ben and Natalie. Inside was a cinderella doll and a Disney yahtzee Jr game. Also a card saying that they were so excited for her wish for Disneyworld, and they had sent these gifts to add to the excitement as we start the countdown!! She was so excited to get the package.<br /><br /><div><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhR3_aRukhAzf4_sRjQu2x2swTwFWwIeEFXI8bX3SwZ0WEIyhf3UW5NkUoYmuHBDbwhzLhlxAZhyphenhyphenqfsqpagt78qyqmxmXvEXakN7EFivMxRhZLCWJ2kV3ulQb8J-SOAqvsg1uOf7W7YcJY/s1600/img_4448.jpg"><img style="TEXT-ALIGN: center; MARGIN: 0px auto 10px; WIDTH: 299px; DISPLAY: block; HEIGHT: 400px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5660152781911576466" border="0" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhR3_aRukhAzf4_sRjQu2x2swTwFWwIeEFXI8bX3SwZ0WEIyhf3UW5NkUoYmuHBDbwhzLhlxAZhyphenhyphenqfsqpagt78qyqmxmXvEXakN7EFivMxRhZLCWJ2kV3ulQb8J-SOAqvsg1uOf7W7YcJY/s400/img_4448.jpg" /></a> We went to the fair last Friday evening and had a ton of fun! Gracie rode the pony named "Magic" since her favorite "Chip" wasn't there. We played games and saw the animals and rode some rides. It was a lot tof fun!<br /><br /><br /><br /><div><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi9J8OL8irxIrlx4vww62lXQSPJJIZJRAjuZv1Ujk5xtAJZ6DU9BLSFtiN7dXmDOS-quO4-OTrMNWSq7wz0IUFQnAP5eLYP1_YDzu1Vx3dtu7XJ1565VuNHzWSKjhvF9mXtMZO2I0M2vME/s1600/img_4453.jpg"><img style="TEXT-ALIGN: center; MARGIN: 0px auto 10px; WIDTH: 299px; DISPLAY: block; HEIGHT: 400px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5660152776748360514" border="0" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi9J8OL8irxIrlx4vww62lXQSPJJIZJRAjuZv1Ujk5xtAJZ6DU9BLSFtiN7dXmDOS-quO4-OTrMNWSq7wz0IUFQnAP5eLYP1_YDzu1Vx3dtu7XJ1565VuNHzWSKjhvF9mXtMZO2I0M2vME/s400/img_4453.jpg" /></a> Cotton candy at the fair!<br /><br /><br /><br /><br /><br /><div></div></div></div>Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-3034742804800087863.post-36420754421807114362011-09-26T09:09:00.001-07:002011-09-26T09:18:22.161-07:00My heart is fullMy heart has been so full this month with it being Childhood cancer awareness month to start with. Then 2 amazing events with the Taylor Swift concert and the curesearch walk. Both of which Gracie was well and strong to participate in. Also this last Sunday was Gracie's first primary program!! I've shed a lot of thankful and happy tears this month and say random prayers throughout the days of simply "thank you Lord" I remember last years feelings as I watched the other kids her age up on the stand, as I was holding my 27 lb fragile 4 year old. A year ago this month, she was doing her stem cell transplant. Next month holds more fun memories to come. The state fair! which Gracie LOVES and wasn't able to do last year. She loves to ride the ponies. The other kids spend their money on rides and games, and she wants to spend her money on pony rides. after that, we head to Disneyworld for her make a wish trip to meet the princesses! We can hardly wait. I can feel more tears coming on just thinking of it. We are so blessed and God is good. Thank you all for your prayers always. We feel your love.Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-3034742804800087863.post-27252946976091487032011-09-26T09:03:00.000-07:002011-09-26T09:03:11.559-07:00Gracie singing along to her favorite Taylor Swift Song!<iframe height="344" src="http://www.youtube.com/embed/fHJj20YZlaA?fs=1" frameborder="0" width="459" allowfullscreen=""></iframe>Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-3034742804800087863.post-72499788462613252342011-09-25T18:33:00.000-07:002011-09-25T19:04:39.993-07:00Curesearch walk Sept 24 2011<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiSMl4lRE3do0CPULERIQtRU2qnzU_jdVsLpErnwUcscY8jWVakgQoDAIoIdeadkvXxyqKSjdMa4BJHw_2ig3A3UD7dx9S5tx97dpWGoWxsfTOnpHMksTndx030V88LszDwXsPZ_RmZ42U/s1600/gracie+curesearch+medal.jpg"><img style="TEXT-ALIGN: center; MARGIN: 0px auto 10px; WIDTH: 400px; DISPLAY: block; HEIGHT: 267px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5656478501761836754" border="0" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiSMl4lRE3do0CPULERIQtRU2qnzU_jdVsLpErnwUcscY8jWVakgQoDAIoIdeadkvXxyqKSjdMa4BJHw_2ig3A3UD7dx9S5tx97dpWGoWxsfTOnpHMksTndx030V88LszDwXsPZ_RmZ42U/s400/gracie+curesearch+medal.jpg" /></a> Gracie getting her medal<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhf62cts_NovdTqlUfWGd-u1nrhlgb34CyXwYugA1uXGUKuNIa_urNs9yEY0rqXbFkU2ag2f9JPWbYgPwHYNB1FLbEAi3yEhcuysFgq3Q5cexyTLwwClE9DfPkeKuJKO31s_vpsMebF7J8/s1600/img_4224.jpg"><img style="TEXT-ALIGN: center; MARGIN: 0px auto 10px; WIDTH: 299px; DISPLAY: block; HEIGHT: 400px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5656478498242558434" border="0" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhf62cts_NovdTqlUfWGd-u1nrhlgb34CyXwYugA1uXGUKuNIa_urNs9yEY0rqXbFkU2ag2f9JPWbYgPwHYNB1FLbEAi3yEhcuysFgq3Q5cexyTLwwClE9DfPkeKuJKO31s_vpsMebF7J8/s400/img_4224.jpg" /></a><br />Watching the angel balloons<br /><br /><div><br /><div><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgdSIeUXU7ggvogdl_6Q0jw5L2cqSSdap7B2WIJv-HAVhE2WEJ45_3-qOu_uoS-2JTzLc9izIR0l4uaWU6jPzcfmu6YGUD-L804SYV8zOLP1bcnEAtpvfPyuds0jStEoic35Wr5puMxU74/s1600/img_4220.jpg"><img style="TEXT-ALIGN: center; MARGIN: 0px auto 10px; WIDTH: 299px; DISPLAY: block; HEIGHT: 400px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5656478490035846594" border="0" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgdSIeUXU7ggvogdl_6Q0jw5L2cqSSdap7B2WIJv-HAVhE2WEJ45_3-qOu_uoS-2JTzLc9izIR0l4uaWU6jPzcfmu6YGUD-L804SYV8zOLP1bcnEAtpvfPyuds0jStEoic35Wr5puMxU74/s400/img_4220.jpg" /></a><br />Gracie and Briley-ready to walk for a cure!<br /><br /><br /><div><img style="TEXT-ALIGN: center; MARGIN: 0px auto 10px; WIDTH: 299px; DISPLAY: block; HEIGHT: 400px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5656478490553414098" border="0" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhhkrH-UCvZAUvlIOkSXAwsloxTqD4Ukjn3x83dUDGFTMpE0MP8FHAkVfXcG3F9xibaIUNGpESIPyFgHvPQ9g5tchbIqHDUONkORfNj7DHcxh6_0hkT5MslIEsRQKm1zZBfQb-_3enXRPo/s400/img_4212.jpg" /><br />The angel balloons, for all the children lost to cancer.<br /><br /><br /><div><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj9bvYGtxVPmIBb3kZBagAID0ULGzNvZGdSN8fzHn3SBrbX2WyIhfNqfPNIXPSFQSklB_CNXOhTSq9zJlBxy2i-C7jA5QRqLTacQssI1PynPE_YEMFLLzUDwWJOku6OqAu4N42Kp32-JOw/s1600/img_4229.jpg"><img style="TEXT-ALIGN: center; MARGIN: 0px auto 10px; WIDTH: 400px; DISPLAY: block; HEIGHT: 299px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5656477112688698562" border="0" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj9bvYGtxVPmIBb3kZBagAID0ULGzNvZGdSN8fzHn3SBrbX2WyIhfNqfPNIXPSFQSklB_CNXOhTSq9zJlBxy2i-C7jA5QRqLTacQssI1PynPE_YEMFLLzUDwWJOku6OqAu4N42Kp32-JOw/s400/img_4229.jpg" /></a><br />Gracie and Briley waiting in line to go on stage for their champion medals.<br /><br /><div><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjO1Kdu7D7Ti1FHt8s1_JtYHGmv5Qv3BlrrT9s7zFAbtHlQQKT4XqK_2jp2EEx88c072ckQacgkX3CZCSVt4tlyMBJpdI_z4IGNCBn0X4O2kgMwgu2t1yZPqIwjYD6QEduKam5GZ_MRMzM/s1600/img_4232.jpg"><img style="TEXT-ALIGN: center; MARGIN: 0px auto 10px; WIDTH: 299px; DISPLAY: block; HEIGHT: 400px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5656477104797349938" border="0" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjO1Kdu7D7Ti1FHt8s1_JtYHGmv5Qv3BlrrT9s7zFAbtHlQQKT4XqK_2jp2EEx88c072ckQacgkX3CZCSVt4tlyMBJpdI_z4IGNCBn0X4O2kgMwgu2t1yZPqIwjYD6QEduKam5GZ_MRMzM/s400/img_4232.jpg" /></a><br />Gracie and Danielle<br /><br /><div><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg6CfVf2Ts_A8PySP1s6GC2w0HEQaIE44X_L1-keQSP75BaLOI_bJ69AuLM9cCI3cmgC7gnEGAW4AvWOsiLtN_RSOeR03sP-qBXrh5OrMqQNZ1kybmrkh8CvYXtBLhePS1pzch44BsQtbk/s1600/img_4245.jpg"><img style="TEXT-ALIGN: center; MARGIN: 0px auto 10px; WIDTH: 299px; DISPLAY: block; HEIGHT: 400px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5656477101105986450" border="0" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg6CfVf2Ts_A8PySP1s6GC2w0HEQaIE44X_L1-keQSP75BaLOI_bJ69AuLM9cCI3cmgC7gnEGAW4AvWOsiLtN_RSOeR03sP-qBXrh5OrMqQNZ1kybmrkh8CvYXtBLhePS1pzch44BsQtbk/s400/img_4245.jpg" /></a><br />Gracie's favorite nurse Andrea<br /><br /><br /><div><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjD6N6FVb-5XWvpwmYRIM2PxFKE5aXf4eX0yFuy9i6IqIyDXqf_8gats_CMvcxL5g9trwjSSXtv2AXQ4eUat4K2669K-PcMH9v8LUyRbPGLt8u9NPuepNt_TonJfN1XUtnA4VJmx7qH4GU/s1600/img_4267.jpg"><img style="TEXT-ALIGN: center; MARGIN: 0px auto 10px; WIDTH: 299px; DISPLAY: block; HEIGHT: 400px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5656477098664196546" border="0" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjD6N6FVb-5XWvpwmYRIM2PxFKE5aXf4eX0yFuy9i6IqIyDXqf_8gats_CMvcxL5g9trwjSSXtv2AXQ4eUat4K2669K-PcMH9v8LUyRbPGLt8u9NPuepNt_TonJfN1XUtnA4VJmx7qH4GU/s400/img_4267.jpg" /></a> The whole family after the walk!<br /><br /><br /><div><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhRw5bCjiADytD9umCHhs3ziuN9uOcj6l6YC0FreZb2Ba6vXcsE6T4LgjXYCDVgokSWKGGh1JJdAtzrRuE38zCAnD6tK9Q-jlQeuzZyXm74t8ruTYcNPT1M-hG3EkhhcVCV-jREi7ILmI8/s1600/img_4277.jpg"><img style="TEXT-ALIGN: center; MARGIN: 0px auto 10px; WIDTH: 400px; DISPLAY: block; HEIGHT: 299px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5656477091749288194" border="0" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhRw5bCjiADytD9umCHhs3ziuN9uOcj6l6YC0FreZb2Ba6vXcsE6T4LgjXYCDVgokSWKGGh1JJdAtzrRuE38zCAnD6tK9Q-jlQeuzZyXm74t8ruTYcNPT1M-hG3EkhhcVCV-jREi7ILmI8/s400/img_4277.jpg" /></a> My pictures ended up out of order, so here's my post in order :)</div><br /><div>Briley's family drove 5 hours from Texas to be with us for the Curesearch walk. WE met them at Cook Children's back in January and have seen them at the clinic several times, and formed a friendship with their whole family. We thought it was so awesome that they drove all that way to be on Gracie's team! They could've easily formed their own team, since Briley has leukemia, but they came to support us and walk on our team. We passed out team Briley bracelets to our team to honor Briley as well. We will go down to Texas in April to walk with team Briley!! Their family arrived at 10 pm friday night and we stayed up talking until midnight. The kids had such a fun time together! They also have a little boy that is Von's age and those two were hilarious together! They acted like old friends and it seemed like they had the same ideas and thoughts at the same time. lol. We wish we lived closer and they all could play more often. </div><br /><div>Saturday we woke up at 7 and got ready to go. We arrived at the walk at 8:45 with donuts and water and gatorade for the team. The opening ceremony started at 9 and they had the parents that had lost children to cancer, release balloons into the air for their angels. I got pretty emotional. There were just too many balloons. 1 would've been 1 too many. After that, they honored those currently fighting, and those in remission. They had each child go on stage and state their name and recieve their medal for being champions. :) Gracie told me on the way there that she wasn't going to say her own name, but she did it. It was precious and made my heart full. We had 34 people on our team and we are so grateful for all the support! This was the first curesearch walk in Tulsa, and they had hoped to raise $40,000 but they raised $96,000!!! so awesome! and 96 cents of every dollar goes to research. </div><br /><div>The walk was 3 miles long and we pushed the little ones in strollers a lot of the time. It took us about an hour, and the weather was absolutely perfect. After the walk, we headed home and had a little barbeque with Briley's family. It was a lot of fun to visit and watch the kids have so much fun. They stayed until about 4 or 5 and made the trip back home. </div><br /><div><br /><br /><br /><br /><br /><br /><br /><br /><br /><br /><br /><br /><br /><br /><br /><br /><br /></div><br /><div></div></div></div></div></div></div></div></div>Unknownnoreply@blogger.com1tag:blogger.com,1999:blog-3034742804800087863.post-51241864137842718522011-09-24T18:31:00.001-07:002011-09-24T20:48:26.135-07:00Taylor Swift concert!<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgBpyPNdInOSZ3_A57iPi3AqeFBTM4_bLUQMfOOBvCW5P0s5se6MhD2n1Ojj8Ekr_p7-YlUJc0h2IGt8_DcSIamwxkrpol6MHtxVoCRPr-OAkk9BZlRAEFs07l0B18fEqXQ9URHOfW9KzA/s1600/img_4155.jpg"><img style="TEXT-ALIGN: center; MARGIN: 0px auto 10px; WIDTH: 300px; DISPLAY: block; HEIGHT: 400px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5656105126495262898" border="0" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgBpyPNdInOSZ3_A57iPi3AqeFBTM4_bLUQMfOOBvCW5P0s5se6MhD2n1Ojj8Ekr_p7-YlUJc0h2IGt8_DcSIamwxkrpol6MHtxVoCRPr-OAkk9BZlRAEFs07l0B18fEqXQ9URHOfW9KzA/s400/img_4155.jpg" /></a> Me and my sweetie.<br /><br /><div><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi4PDODyjEEM1BjKATVQ_FnCj8B869uAbaBFGIYfxalI2NAB7-B90jhDBNTnR_y2-mbcADcPNvY9Xr8wao4ra3kTFasxnk0XNalPGeUvf2SeG8BApJzs8PRU6jFWyvHTBTUYdYSd34QPL4/s1600/img_4192.jpg"><img style="TEXT-ALIGN: center; MARGIN: 0px auto 10px; WIDTH: 298px; DISPLAY: block; HEIGHT: 400px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5656105125071374098" border="0" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi4PDODyjEEM1BjKATVQ_FnCj8B869uAbaBFGIYfxalI2NAB7-B90jhDBNTnR_y2-mbcADcPNvY9Xr8wao4ra3kTFasxnk0XNalPGeUvf2SeG8BApJzs8PRU6jFWyvHTBTUYdYSd34QPL4/s400/img_4192.jpg" /></a> TAYLOR SWIFT!<br /><br /><br /><br /><div><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhHBlclpsWBt3slnESOry1Dnz10LBUd6dAbFTfMkIyv70eQ2FcmvpPk-mCmrTZIe3TjwyyLIwZLC_5w0CRUBRZAGcZ5mIXUv1Ihxzm9VwYW0tffTbTT3MhXTOsED0HTrG6-knUNu9x5DZg/s1600/img_4153.jpg"><img style="TEXT-ALIGN: center; MARGIN: 0px auto 10px; WIDTH: 299px; DISPLAY: block; HEIGHT: 400px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5656104830442530114" border="0" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhHBlclpsWBt3slnESOry1Dnz10LBUd6dAbFTfMkIyv70eQ2FcmvpPk-mCmrTZIe3TjwyyLIwZLC_5w0CRUBRZAGcZ5mIXUv1Ihxzm9VwYW0tffTbTT3MhXTOsED0HTrG6-knUNu9x5DZg/s400/img_4153.jpg" /></a> Gracie has loved Taylor Swift forever and her favorite song is "you belong with me." She has been able to sing every word since she was 3. I have a video of her singing it at 3 at Christmas, also a few videos of her singing it during the last 2 years, a couple of them, with a beautiful bald head. Well, when we heard Taylor Swift was coming to Tulsa, the girls were so excited! but the tickets sold out in less than 10 minutes. We have a friend of a friend that works for Cherokee casino and they have suite seats, so he was able to get 2 suite tickets for Gracie to be able to go! Then we bought 2 tickets on the floor for Chloe and Brandon to go as well. We figured it would be too overwhelming for Gracie to be on the floor, and we were right. The Suite seats were perfect!! they have comforatble seats and room to breathe! and also room to dance :) Gracie was beyond excited and loved every minute of it. the concert didn't get over until 11 pm and, the last half hour or so, she just snuggled on my lap cause she was tired. It was nice to have the comfy seat. We had a fabulous view! and Taylor even sang Gracie's favorite song!!<br /><br /><br /><div><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiZTIwqYeV6dR01dqRSEju8_3yxwULf9j4zgiDp0acrQMrEuqr89kRxIxMjN9x-5Jc-vIzOSA_Bqj2BJ-RtLsuYdrRPyq-cwqw74cExKH84WIdHYbUii9OSQJgPv-IbEgfp6CjiVPsR9Xk/s1600/img_4143.jpg"><img style="TEXT-ALIGN: center; MARGIN: 0px auto 10px; WIDTH: 299px; DISPLAY: block; HEIGHT: 400px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5656104827873056722" border="0" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiZTIwqYeV6dR01dqRSEju8_3yxwULf9j4zgiDp0acrQMrEuqr89kRxIxMjN9x-5Jc-vIzOSA_Bqj2BJ-RtLsuYdrRPyq-cwqw74cExKH84WIdHYbUii9OSQJgPv-IbEgfp6CjiVPsR9Xk/s400/img_4143.jpg" /></a> enjoying her chips and dip. She aslo had a soda in a "cool cup" and it was all free:)<br /><br /><br /><div><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhxzd62jhl5nJTHjvy0xKi2Nkipc-f6lkfYuo-0e0o5rXBfg-5l4XUk9Cdpxh2GPe1IeNHaSYY6aNVSPA1R5vz0bh2AFUxzb-qhNj4zDDbfdn43WaBVn9PoxURpNBwRGFstmgyPuFvxsUE/s1600/img_4138.jpg"><img style="TEXT-ALIGN: center; MARGIN: 0px auto 10px; WIDTH: 299px; DISPLAY: block; HEIGHT: 400px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5656104824932643874" border="0" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhxzd62jhl5nJTHjvy0xKi2Nkipc-f6lkfYuo-0e0o5rXBfg-5l4XUk9Cdpxh2GPe1IeNHaSYY6aNVSPA1R5vz0bh2AFUxzb-qhNj4zDDbfdn43WaBVn9PoxURpNBwRGFstmgyPuFvxsUE/s400/img_4138.jpg" /></a> Livin' the suite life<br /><br /><div><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi-rzisS4EgfLU2SEGk2Uo1MQe5gtE4kcNsynVCZx6y41ZLqsVfR6k85DwcLTlbBQVc7p3szixI65N_2yEMLcBMBfh5pHjdKuJBOnIEZg5TZlf91o3FtvlOM75-UingzRN6yJNZonUe-Uc/s1600/img_4137.jpg"><img style="TEXT-ALIGN: center; MARGIN: 0px auto 10px; WIDTH: 299px; DISPLAY: block; HEIGHT: 400px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5656104822595083874" border="0" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi-rzisS4EgfLU2SEGk2Uo1MQe5gtE4kcNsynVCZx6y41ZLqsVfR6k85DwcLTlbBQVc7p3szixI65N_2yEMLcBMBfh5pHjdKuJBOnIEZg5TZlf91o3FtvlOM75-UingzRN6yJNZonUe-Uc/s400/img_4137.jpg" /></a> Gracie and Chloe waiting in line to get tshirts<br /><br /><br /><div><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjaV6RMPwEhxH0xLwOwiT9JEZsA2lGvRqdsElF26NCY3F8gXPFt0cbgeqZ13m6QduDuHTHSw-JaLDjQ6XVzSvO2-h1SkZCttbF9CpCBDilf1fWiV44EGMN70XsX3yB3MtjGH1-mR_t_rvs/s1600/img_4135.jpg"><img style="TEXT-ALIGN: center; MARGIN: 0px auto 10px; WIDTH: 400px; DISPLAY: block; HEIGHT: 299px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5656104820516291842" border="0" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjaV6RMPwEhxH0xLwOwiT9JEZsA2lGvRqdsElF26NCY3F8gXPFt0cbgeqZ13m6QduDuHTHSw-JaLDjQ6XVzSvO2-h1SkZCttbF9CpCBDilf1fWiV44EGMN70XsX3yB3MtjGH1-mR_t_rvs/s400/img_4135.jpg" /></a> On the way there!!<br /><br /><div></div></div></div></div></div></div></div>Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-3034742804800087863.post-82508260917087552362011-09-14T19:42:00.000-07:002011-09-14T20:01:25.338-07:003 month follow up scans<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi_uWNzRFo29ZveVgAW-P1lXhc4YG9_jhCaamS-sc6UZ22uAF6br-zTw1Q_WY0SKJ9dZTTrNsVHDo_iTgXnkv3F8M3oyWDZLF4PIv2gkdESAAj2k0cDl2YJworPA2TWYSq4WOOuoJtSwkw/s1600/gracie+Daisy+scouts.jpg"><img style="TEXT-ALIGN: center; MARGIN: 0px auto 10px; WIDTH: 299px; DISPLAY: block; HEIGHT: 400px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5652412622988499794" border="0" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi_uWNzRFo29ZveVgAW-P1lXhc4YG9_jhCaamS-sc6UZ22uAF6br-zTw1Q_WY0SKJ9dZTTrNsVHDo_iTgXnkv3F8M3oyWDZLF4PIv2gkdESAAj2k0cDl2YJworPA2TWYSq4WOOuoJtSwkw/s400/gracie+Daisy+scouts.jpg" /></a> Gracie started Daisy scouts last week and she loved it! She keeps saying "scouts is fun!" She is so excited to go again this week!<br /><br /><div><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh4h_gDNuZLQBbXMMel0xGtlS5siIjzg6QZbmpa6rxRLDKyd2q3iW0BuqvIX9YcABpnShfCoeGubWJSH_6zBLO1ftHhIhOGNoLzaAxcOlIMFYXxeJNTX2iJMhXQyYTRjVI9jshHjz_lUKI/s1600/Gracie+pigtails+9-11-11.jpg"><img style="TEXT-ALIGN: center; MARGIN: 0px auto 10px; WIDTH: 299px; DISPLAY: block; HEIGHT: 400px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5652412623229035282" border="0" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh4h_gDNuZLQBbXMMel0xGtlS5siIjzg6QZbmpa6rxRLDKyd2q3iW0BuqvIX9YcABpnShfCoeGubWJSH_6zBLO1ftHhIhOGNoLzaAxcOlIMFYXxeJNTX2iJMhXQyYTRjVI9jshHjz_lUKI/s400/Gracie+pigtails+9-11-11.jpg" /></a> Gracie's hair is growing so fast! and it is long enough for little pigtails again. She is looking so grown up. We drove down to Ft Worth yesterday and left at 5 am. got there at 10 and checked in. They had her start with the gatorade drink that has the contrast in it. she is supposed to drink it a little at a time for 2 hours. This is where the G button comes in very very handy! I just hook er up to the tube and she doesnt even have to drink any of it. :) then they were running late, so they didn't call her back til 1:45 and then they did an IV for the IV contrast, which I had forgotten about since every other time, she had a port or central line. She was not happy about it at all but she held still through the tears. Once that was done, we waited another 1/2 hour and then it was finally her turn. She held real still for the CT and it was very quick. After it was done, she got the IV out and we went to eat. It was about 3:00 and we were starving. I never eat when she can't eat. She wanted one of everything it seemed. we got, pizza, turkey, loaded baked potato, doritos and candy bars to share. Aftere that we went to the Build-a-bear at the hspital. Cook Children's is the first hospital to get one and it is great. I was just going to let her get an animal without an outfit, but that was before the IV i didn't know about. :) lol so she got a much deserved dress to go on her new bunny, named "bunny" haha. We stopped back by radiology to get a copy of the scan and then headed home. We got home around 8:45. I gave the Cd to Brandon to look at and he said he didn't see anything as far as he could tell, and there wasn't a report yet. So today I called and asked if the report was done and it was. The results? NO evidence of disease!! We are so very blessed that She remains disease free and she is healthy and strong. Most days she doesn't even need tylenol. Thank you all for your continued prayers. We love and appreciate you so much! We will go down for clinic on Monday, so glad we don't have to wait til then for the results. She will just have labs and visit with the doctor.<br /><br /><br /><div></div></div>Unknownnoreply@blogger.com3tag:blogger.com,1999:blog-3034742804800087863.post-66442811355148557622011-09-07T07:54:00.000-07:002011-09-07T08:11:05.613-07:00"let us know what we can do to help"1 in 5 children with cancer, will lose the battle. this number is even higher for Neuroblastoma. although it is only the 5th most common childhood cancer, it is responsible for the most deaths.<br />I hate how statistics like this constantly try and enter my mind! it is important for everyone to know this! but I already know and hate the constant reminders and worry. If it was your child, what would you do? Pretend for even a moment, if you can. This is not meant as a guilt trip. Please help us raise money to support childhood cancer research, if you can, even a few dollars, every bit helps. truly we all can make a difference together. <a href="http://www.curesearchwalk.org/tulsa/amazinggracie">http://www.curesearchwalk.org/tulsa/amazinggracie</a><br />September is Childhood cancer awareness month.<br />Next week, Gracie will have her 3 month follow up scans. This enters my mind several times a day, and I ask for your prayers that the scans will remain clear!Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-3034742804800087863.post-34727650782787883412011-08-29T08:31:00.000-07:002011-08-29T08:31:59.044-07:00Lisa Bloxham (1)Hey guys! Please help our team AMAZING GRACIE raise money for the CureSearch walk. The walk is Sep 24th. DOnations go to help find a cure for childhood cancer. Help us EXCEED our fundraising goal! Come on guys, a little bit goes further than you know:) Click on the link and it will take you straight to our team page where YOU can donate! It is also where you can sign up to walk with us! $10 for adults and free for kids! Thanks so much! :)
<br />http://www.curesearchwalk.org/tulsa/amazinggracie
<br />Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-3034742804800087863.post-76941872717849791862011-08-26T06:37:00.000-07:002011-08-26T06:59:11.224-07:00Kindergarten!!<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEijGnDGfX85nUmYT1agGRWQyvAy4Iwe8WID5tFrA0fcn49Jak_dI-cX3W7ncBD-gaM7YqMIE0Xv9E07t4t7MQ-iT6jFacUbK-6Wb0Mfcakhtiwqg0TE7kPL7hBp3G30hclOXncmE7KzcmM/s1600/img_3806.jpg"><img style="TEXT-ALIGN: center; MARGIN: 0px auto 10px; WIDTH: 299px; DISPLAY: block; HEIGHT: 400px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5645160025833619298" border="0" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEijGnDGfX85nUmYT1agGRWQyvAy4Iwe8WID5tFrA0fcn49Jak_dI-cX3W7ncBD-gaM7YqMIE0Xv9E07t4t7MQ-iT6jFacUbK-6Wb0Mfcakhtiwqg0TE7kPL7hBp3G30hclOXncmE7KzcmM/s400/img_3806.jpg" /></a>I met with the principal last week to discuss Gracie and her needs and she was super nice and said they will help in any way she needs. I have a letter from Dr Granger stating her condition and her diabetes insipidus. So it basically just says that Gracie needs to be able to get a drink, use the bathroom, get pain medicine, and take a rest at any time she needs. The principal gave the letter to all the teachers Gracie has with home room, art, PE, and music, so they are all aware and informed. Gracie brought a blanket and pillow to leave at school in the nurses office if she needs a rest. Yesterday was Gracie's first day of Kindergarten! She was excited to go and she packed her lunch and went to wait for the bus with Chloe. Im glad they are at the same school.
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<br /><div><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjLmmsVjHfKCtu3ofOotw5pRzagia3QivO3LNjy2npbU4PMpIu0Dmge_HMxMver7UByuPNuc02Izb2wfwXbwnjPI7-biI6oZZnllAhoYOZK9NZ-gjgJpoghCeADHLv2glDRBZEmHQVsF8w/s1600/img_3812.jpg"><img style="TEXT-ALIGN: center; MARGIN: 0px auto 10px; WIDTH: 299px; DISPLAY: block; HEIGHT: 400px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5645160017341615218" border="0" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjLmmsVjHfKCtu3ofOotw5pRzagia3QivO3LNjy2npbU4PMpIu0Dmge_HMxMver7UByuPNuc02Izb2wfwXbwnjPI7-biI6oZZnllAhoYOZK9NZ-gjgJpoghCeADHLv2glDRBZEmHQVsF8w/s400/img_3812.jpg" /></a> Getting on the bus!! :) We are blessed to have the bus-stop be our house! Gracie had a pretty good first day. She told me she cried 2 times, once when her pants were too tight and the nurse came and put some ointment on her hip, then she cried at recess when she couldn't find her teacher, Mrs Schaefer. Mrs. Schaefer has been really sweet to us since hearing about Gracie last year. So we were beyond excited that she got her for a teacher! I talked with her on the phone later and she told me the same thing Gracie had, and that she did well the rest of the time! I was so glad and relieved to hear she had a good day. She seemed so much bigger to me when she got home and was telling me all about her day. WE are SO proud of her. Kindergarten is such a big milestone for anyone, but especially for her! We feel so blessed.
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<br /><div><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhTz3Dgqn9jcK9tLtochsTK127iPUrgkc8MyPCewSUElpcCHSBM6zkZKgmfGiXCM3Yb32ZXeL05Uhjd9WEvJvjDDrxRV5OLFKXS9-KjJj8k_TBGnxtCOlD9NudejGw6s_y7JzGCqoLf528/s1600/img_3821.jpg"><img style="TEXT-ALIGN: center; MARGIN: 0px auto 10px; WIDTH: 299px; DISPLAY: block; HEIGHT: 400px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5645160011738813746" border="0" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhTz3Dgqn9jcK9tLtochsTK127iPUrgkc8MyPCewSUElpcCHSBM6zkZKgmfGiXCM3Yb32ZXeL05Uhjd9WEvJvjDDrxRV5OLFKXS9-KjJj8k_TBGnxtCOlD9NudejGw6s_y7JzGCqoLf528/s400/img_3821.jpg" /></a> Von was so excited to see the girls when they got off the bus. He isn't sure he likes being the only one home.
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<br /><div><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgLPqMShyphenhyphen1Leb4k-gEouk09Dt1QtuuXdix_ZNmufSE6xlN_R_mx9qEs-ZcAgPWmIuDdnIyf5ffxJvLAQ1T4KDHqg82D_DlKYD8hiaAeRB4t316o4WC1PPXkzWOp0iCkQiA_fjoo7JK-7Xs/s1600/img_3828.jpg"><img style="TEXT-ALIGN: center; MARGIN: 0px auto 10px; WIDTH: 299px; DISPLAY: block; HEIGHT: 400px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5645159999866733778" border="0" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgLPqMShyphenhyphen1Leb4k-gEouk09Dt1QtuuXdix_ZNmufSE6xlN_R_mx9qEs-ZcAgPWmIuDdnIyf5ffxJvLAQ1T4KDHqg82D_DlKYD8hiaAeRB4t316o4WC1PPXkzWOp0iCkQiA_fjoo7JK-7Xs/s400/img_3828.jpg" /></a> This is Gracie today on her 2nd day of school. Excited and ready to go back!! :)
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<br />Unknownnoreply@blogger.com5tag:blogger.com,1999:blog-3034742804800087863.post-43314384744325154702011-08-06T21:38:00.000-07:002011-08-06T21:51:02.482-07:00Gracie's 5th Birthday<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjnBNPSOTIzvPATfBD0gIjihuv_yvLPzvs93_8bJgZnnk0JxJJBlGv5OLtYwGPXoHS38x_pW8FIhlsCaR3gB2xvR6GFkzGZLh6GGdMt5qFO4-vlZvhleHVrQO_esTlSzXM9yjptXTRr7zE/s1600/img_3661.jpg"><img style="TEXT-ALIGN: center; MARGIN: 0px auto 10px; WIDTH: 400px; DISPLAY: block; HEIGHT: 300px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5637969942805389490" border="0" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjnBNPSOTIzvPATfBD0gIjihuv_yvLPzvs93_8bJgZnnk0JxJJBlGv5OLtYwGPXoHS38x_pW8FIhlsCaR3gB2xvR6GFkzGZLh6GGdMt5qFO4-vlZvhleHVrQO_esTlSzXM9yjptXTRr7zE/s400/img_3661.jpg" /></a> Here is a picture of Gracie the day she was born.<br /><br /><div><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj1in2nlloGM1OSiDDgWrYtEgYM_NhD4trUVUrCWUi6Rsqw4K7zilBiyKKyzM6pOTu8lyBd1houfDG7jRfb3MGH5JjGMjYS8ONvcZSOkTFmk_yRRD1I07J0kkc09V0gM_yPyaYhdjr4CZI/s1600/img_3673.jpg"><img style="TEXT-ALIGN: center; MARGIN: 0px auto 10px; WIDTH: 299px; DISPLAY: block; HEIGHT: 400px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5637969939048629986" border="0" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj1in2nlloGM1OSiDDgWrYtEgYM_NhD4trUVUrCWUi6Rsqw4K7zilBiyKKyzM6pOTu8lyBd1houfDG7jRfb3MGH5JjGMjYS8ONvcZSOkTFmk_yRRD1I07J0kkc09V0gM_yPyaYhdjr4CZI/s400/img_3673.jpg" /></a> Here is my princess 5 years later on her 5th birthday! Gracie wanted a Cinderella party and she chose this princess cake from Walmart. it was so cute and she loved it. It was sure easier on me too, not having to make it. :)<br /><br /><br /><div><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiQUqEUs8aIFvwRmhZwDjn4lMFiwDl1z1BNPl4STwY0Sy09xJw-mx-MzMMMJQMc-HSOPDW79Br2nxBzTUDNUmc2xaVAoKAmoJyw0Z9tTqjRKnUVrRdlO3Est2TcV4g-YsXMNhRQqdWCqIQ/s1600/img_3674.jpg"><img style="TEXT-ALIGN: center; MARGIN: 0px auto 10px; WIDTH: 299px; DISPLAY: block; HEIGHT: 400px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5637969935298027970" border="0" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiQUqEUs8aIFvwRmhZwDjn4lMFiwDl1z1BNPl4STwY0Sy09xJw-mx-MzMMMJQMc-HSOPDW79Br2nxBzTUDNUmc2xaVAoKAmoJyw0Z9tTqjRKnUVrRdlO3Est2TcV4g-YsXMNhRQqdWCqIQ/s400/img_3674.jpg" /></a> Gracie had some friends over for a party. It was her first time inviting friends over. Last year she wanted to, but in the end, she wan't feeling up to it. It was less than 2 weeks after her major surgery. I remember thinking last year that it might be her last birthday...How blessed and grateful we feel to have her so healthy and strong a year later!! I arranged a party through mylilprincessparty.com and the lady comes dressed as a princess and does all the games and activities. The kids had a ton of fun and each got their picture with Cinderella.<br /><br /><div><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjv5MP6RhIiAEy17xvjgdhONY62UziJ4RwNyEi9hI2U9Mz2ldvZ6SX8BOwrji6-0UirB10uUjAdIzrLz8dCd07siuuSi9QXr2Bw0gv8zkcylaov4S9SVjfQHrUU9Gde6SwDHbtVoQtpSzI/s1600/img_3671.jpg"><img style="TEXT-ALIGN: center; MARGIN: 0px auto 10px; WIDTH: 400px; DISPLAY: block; HEIGHT: 299px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5637969929569899330" border="0" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjv5MP6RhIiAEy17xvjgdhONY62UziJ4RwNyEi9hI2U9Mz2ldvZ6SX8BOwrji6-0UirB10uUjAdIzrLz8dCd07siuuSi9QXr2Bw0gv8zkcylaov4S9SVjfQHrUU9Gde6SwDHbtVoQtpSzI/s400/img_3671.jpg" /></a>My little Cinderella. We love you Gracie!!<br /><br /><div><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjoda2K4KlPyaWgrgJN_TtcaOl_ujTmS0IphSX1TpJMVWZUH14D_2wIPYHTURHuIMWtxbvozeM4pAp6B5DJmtDm6IfuvLkuIMGFywPa4-taaLvpaM3R69iOGxqbI_lyuGeNb9Ns_bNUqcc/s1600/img_3662.jpg"><img style="TEXT-ALIGN: center; MARGIN: 0px auto 10px; WIDTH: 299px; DISPLAY: block; HEIGHT: 400px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5637969924496697858" border="0" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjoda2K4KlPyaWgrgJN_TtcaOl_ujTmS0IphSX1TpJMVWZUH14D_2wIPYHTURHuIMWtxbvozeM4pAp6B5DJmtDm6IfuvLkuIMGFywPa4-taaLvpaM3R69iOGxqbI_lyuGeNb9Ns_bNUqcc/s400/img_3662.jpg" /></a><br /><br /><br /><br /><br /><br /><br /><br /><br /><br /><div></div></div></div></div></div>Unknownnoreply@blogger.com3tag:blogger.com,1999:blog-3034742804800087863.post-91184987349014407052011-07-20T16:13:00.000-07:002011-07-20T16:23:57.514-07:00International Neuroblastoma Awareness Week<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgLYSbc7qMV_u3Le6-vt3jcggcFZ32wqNMpQ-wO4eKtVaC00ISTqMNnkDW3SN2vh3_JQar5YntgoBlY_HafieYLAZzGVJE83aFo-v0HZ2xtdIg2uEPdIozNmQLg30N6UbOFYiZ0_zcPZGE/s1600/neuroblastoma+awareness.jpg"><img style="TEXT-ALIGN: center; MARGIN: 0px auto 10px; WIDTH: 400px; DISPLAY: block; HEIGHT: 276px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5631578498265511634" border="0" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgLYSbc7qMV_u3Le6-vt3jcggcFZ32wqNMpQ-wO4eKtVaC00ISTqMNnkDW3SN2vh3_JQar5YntgoBlY_HafieYLAZzGVJE83aFo-v0HZ2xtdIg2uEPdIozNmQLg30N6UbOFYiZ0_zcPZGE/s400/neuroblastoma+awareness.jpg" /></a><br /><br /><br />This week is International Neuroblastoma Awareness week. It is also Gracie's 5th birthday July 25th. I cannot think of a better gift than to donate your lunch money for one day, toward research for a cure!! even a dollar adds up if enough people do it!<br /><br />you can donate in the following ways:<br />*Online at www.lunchforacure.org by credit card, debit card or electronic check. on the site, you can find gracie's tree and add an ornament for every 5 dollars donated. just put Gracie's name on the donation page.<br />•By calling 1-877-883-7464.<br />•By sending a check or money order to:<br />•The Neuroblastoma Foundation<br />•3704 Hamilton Ave<br />•Fort Worth, TX 76107<br /><br />the Neuroblastoma Foundation is a 501(c)(3) public charity. Their donations are tax-deductible to the full extent of the law. Then provide them with the Neuroblastoma Foundation tax ID number: 26-4373250.<br />Who do you know that might give up a lunch for kids with neuroblastoma? Please forward this to them :)<br />thank you and we love you!<br /><br />What is Neuroblastoma?<br />Neuroblastoma is a solid tumor cancer that arises in immature nerve cells and strikes primarily infants and children. It is the most common cancer affecting infants with an incidence rate of almost double that of leukemia. Its cause is unknown. Nearly 70 percent of children diagnosed with Neuroblastoma have advanced-stage disease. Less than 40 percent of children with advanced disease live five years.<br /><br />Neuroblastoma is a solid tumor-a lump or mass-originating from neural crest tissue that is part of the sympathetic nervous system (SNS). This part of the nervous system is responsible for the "fight or flight" response when stress occurs. Nerves of the sympathetic nervous system run parallel along the outside of the spinal column and connect to organs. Since neuroblastoma arises at the interface between the nervous system and the endocrine system (the hormone producing organs-it is one of the few cancers that secrete hormones), it is also included in the class of neuroendocrine tumors.<br /><br />The most common place for neuroblastoma to originate is on the adrenal glands located above each kidney (40 percent of localized tumors and 60 percent of wide-spread disease). Neuroblastoma tumors can also develop in nerve tissues in the neck (1 percent), chest (19 percent), abdomen (30 percent non-adrenal), or pelvis (1 percent)-anywhere along the chain of the sympathetic nervous system. In rare cases, no primary tumor can be discerned.<br /><br />"Neuro-" indicates origin in nerve cells, and "blast" means immature cells. Normal "neuroblasts" (baby nerve cells) begin in embryonic tissue and grow and mature into functioning nerve cells. Neuroblastoma means the immature cells reproduce forming a mass and do not develop into functioning cells (the "-oma" ending denotes a tumor). Neuroblastoma is not a cancer of the central nervous system (CNS) and it is not a brain cancer, but occasionally it metastasizes to the CNS. There are over 50 kinds of pediatric cancers that fall into 12 main categories, one of which is the sympathetic nervous system cancers. Neuroblastoma accounts for more than 97 percent of all sympathetic nervous system cancers.<br /><br />Neuroblastoma is a very rare cancer<br />Of approximately 13,000 new cases of childhood cancer in the U.S. each year, only about 650-700 are neuroblastoma. There is similar incidence in other countries and no clear differences between ethnic groups. About 55 percent of all neuroblastoma patients are boys.<br /><br />Understanding that neuroblastoma is a rare disease is important. Many pediatric oncologists see few neuroblastoma patients. You are entitled to ask how many neuroblastoma patients your hospital treats, to consult with pediatric oncologists and surgeons who specialize in neuroblastoma, and to get all your questions and concerns answered to your satisfaction.<br /><br />Neuroblastoma is a pediatric cancer<br />Neuroblastoma generally develops in young children. The median age at diagnosis is about 2 years old. Numerous children are diagnosed after age 2, but the number of diagnoses decreases as age increases. Adult diagnoses of neuroblastoma are extremely rare but not unheard of.<br /><br />The cause of Neuroblastoma is unknown<br />Although the cause of neuroblastoma is unknown, most physicians believe it is an accidental cell growth that occurs during normal development of the sympathetic nervous system.Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-3034742804800087863.post-48929009827684015042011-07-17T20:05:00.000-07:002011-07-17T20:23:28.614-07:00family vacation<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgcllmyxRH5WFc-PPEjYchC0CKG7OBgMRnCImw1lVjan2yORT0trRlAYoRvJZ79ndcIhfB3ra8BR0_UYIV4nODHFtAlvvEZNxRCRhwj3EGoHQTlHTHIASz79xgXRO-ChGpUf3w2h1gJlFY/s1600/gracie+7-2-11.jpg"><img style="TEXT-ALIGN: center; MARGIN: 0px auto 10px; WIDTH: 299px; DISPLAY: block; HEIGHT: 400px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5630524504384814946" border="0" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgcllmyxRH5WFc-PPEjYchC0CKG7OBgMRnCImw1lVjan2yORT0trRlAYoRvJZ79ndcIhfB3ra8BR0_UYIV4nODHFtAlvvEZNxRCRhwj3EGoHQTlHTHIASz79xgXRO-ChGpUf3w2h1gJlFY/s400/gracie+7-2-11.jpg" /></a> Gracie has been eating well (for her) these last couple weeks. Her weight is not up nor down but holding steady. :) She likes to eat a lot of cereal, cottage cheese, refried beans, yogurt, pudding and mac n cheese.<br /><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjje2Fspws2fwkkq7RIt-0UUtw8IWed2xWQq4gKgRKP1NzNQuoYYAPX8_5oA1JZFQr3yKK5XjEwqNFOAMA-PM2CzNU9Hs21Z2c8Hl-TbNHDAHHKg7VfFCRFp2qmnfs2oQR3Z5O0NdmciAo/s1600/gracie+chloe+dead+horse+point+2011.jpg"><img style="TEXT-ALIGN: center; MARGIN: 0px auto 10px; WIDTH: 299px; DISPLAY: block; HEIGHT: 400px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5630524505820302274" border="0" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjje2Fspws2fwkkq7RIt-0UUtw8IWed2xWQq4gKgRKP1NzNQuoYYAPX8_5oA1JZFQr3yKK5XjEwqNFOAMA-PM2CzNU9Hs21Z2c8Hl-TbNHDAHHKg7VfFCRFp2qmnfs2oQR3Z5O0NdmciAo/s400/gracie+chloe+dead+horse+point+2011.jpg" /></a> We just got back from a 2 week vacation to Idaho, Yellowstone, and Moab. Gracie did really well and was playing like a regular kid. It was wonderful.<br /><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjik3e_e1gqLBS4qxhl9AMvYm2ZvXjPo91Ay1n6zgfFlsEPYCn7kuhdrnxXLnFru8dr9Uch1Yz8mElyfmPpl9nz9nnOJlurh5xcLRkQxd-gboZHPiRoYhM8awPivPadK4xXb6PPkPZ046E/s1600/gracie+delicate+arch+2011.jpg"><img style="TEXT-ALIGN: center; MARGIN: 0px auto 10px; WIDTH: 299px; DISPLAY: block; HEIGHT: 400px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5630524499054144738" border="0" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjik3e_e1gqLBS4qxhl9AMvYm2ZvXjPo91Ay1n6zgfFlsEPYCn7kuhdrnxXLnFru8dr9Uch1Yz8mElyfmPpl9nz9nnOJlurh5xcLRkQxd-gboZHPiRoYhM8awPivPadK4xXb6PPkPZ046E/s400/gracie+delicate+arch+2011.jpg" /></a> Gracie hiked some of the way to delicate arch. it is a mile and a half each way, so obviously that was out of the question to have her do! and who wants her burning that many calories anyway!! haha. Brandon carried her most of the way up. I carried Von some of the way up and Brandon would take Gracie up a ways and then come down and pack Von up. back and forth cause I was a wimp. lol then he carried Von down and I carried Gracie. She was much easier to carry than Von! that 5 less lbs made a huge difference.<br /><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhVLyQhhqV6d3dEGHaLU0Zh10Sknx9RpuW6ylaWIEpjAwiufSuf4UY1XMnuQkdTChqOZFlrcpVZXl1x23xtA-d84isN96eioy7U2l3TcEB3LdXlHiLyTwSqPsUV3G6rdeFVozqrwLt3bGc/s1600/gracie+sand+dune+arch+2011.jpg"><img style="TEXT-ALIGN: center; MARGIN: 0px auto 10px; WIDTH: 400px; DISPLAY: block; HEIGHT: 299px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5630524501145095378" border="0" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhVLyQhhqV6d3dEGHaLU0Zh10Sknx9RpuW6ylaWIEpjAwiufSuf4UY1XMnuQkdTChqOZFlrcpVZXl1x23xtA-d84isN96eioy7U2l3TcEB3LdXlHiLyTwSqPsUV3G6rdeFVozqrwLt3bGc/s400/gracie+sand+dune+arch+2011.jpg" /></a> Gracie at sand dune arch. The kids loved this arch for all the cold sand. we were lucky to be there when the weather wasnt too hot like it usually is in July. we did the hike to delicate arch and just got done with sand dune arch when it started to rain. we went swimming at the Rv place and then dinner and shopping! We had a great time visiting a lot of our family and I was pretty emotional talking with them about her. It is so good to be at this place in treatment. the end!! We were able to have such a wonderful trip with a new outlook on life. the kids all did awesome and we all enjoyed every bit of it.<br />a funny/cute thing I wanted to add. Gracie and Chloe have been playing with their toys and Gracie will tell Chloe to be the DR and she takes her toys to her and says they have cancer. She tells DR Chloe what needs done, surgery etc. then Chloe said "OK the cancer is all gone!!" Gracie said "are you sure? you better do a donut scan" (donut scan is what she calls the CT scan cause it looks like a big donut) well, Dr Chloe did the donut scan and all was clear! :)Unknownnoreply@blogger.com1tag:blogger.com,1999:blog-3034742804800087863.post-86691110963972542292011-06-27T19:17:00.000-07:002011-06-27T19:34:39.330-07:00Cancer freeResults of CT scan = clear!!!<br />Results of MIBG scan = clear!!!<br />Results of bone marrow= clear!!!<br />No evidence of disease!! Gracie is cancer free. I got a call from the nurse on Friday as we were heading out to go camping. She told me the results and we were So happy and relieved. I hung up the phone and sobbed. Thank the good Lord for blessing Gracie and all of our family. A huge weight has been lifted. We had a wonderful weekend camping. Gracie would give me hugs and say " that's because so happy that my cancer is gone" she melts my heart. We cannot even express how happy we are!<br />Today we drove back down for scan review with Dr Granger. She said the happiness on our faces is why she is able to do her job. Because she knows what is possible. I have to admit there are a few times I seriously doubted her when she told me it would/could get better. then They paged the surgeon to come over to clinic to pull her central line out. She was scared but she held real still and it went very quick. She is so happy to be free of the lines and having dressing changes. It has been 10 months with the line in. 4 with the first one and 6 with this one. <br />So, where so we go from here? She will continue with milk feeds to supplement her appetite, and gain weight and strength! She will have scans every 3 months (CT and bone scan) for the first year. After that, it will be every 6 months for 2 more years, and blood work and EKG/echo for another 2 years, providing she doesn't relapse.,heaven forbid. So she will be followed for another 5 years, until she is almost 10! <br />We want to thank you all SO much for all the love and support, kind words and prayers!!! We couldn't have made it through without you, and of course the love and comfort of our Savior and heavenly Father. We are so blessed!!!Unknownnoreply@blogger.com4tag:blogger.com,1999:blog-3034742804800087863.post-43395959490783381092011-06-23T17:37:00.000-07:002011-06-23T17:56:54.166-07:00Follow up scans<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhPxbjmChBgW12ze_uYIHW9_dSBZeA579NNd5KSS5WG3fsRHj7BFTHGEe7MS72xALp9sFQ3SKWAVpeWCrI090jal7YGjc0P7xUwqCAwZh-dTiT_O0fhOnaX1ehqvsiveQnM0n7jO8QGqvA/s1600/gracie+june+11.jpg"><img style="TEXT-ALIGN: center; MARGIN: 0px auto 10px; WIDTH: 299px; DISPLAY: block; HEIGHT: 400px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5621579103290681906" border="0" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhPxbjmChBgW12ze_uYIHW9_dSBZeA579NNd5KSS5WG3fsRHj7BFTHGEe7MS72xALp9sFQ3SKWAVpeWCrI090jal7YGjc0P7xUwqCAwZh-dTiT_O0fhOnaX1ehqvsiveQnM0n7jO8QGqvA/s400/gracie+june+11.jpg" /></a> Sunday night I took all the kids down to Ft worth to stay in a motel. The mcdonald house only allows 4 people to a room, and we had 5 so we had to get a motel. We found one with a pool so that was a fun thing. WE stayed 4 nights and came home today. Monday her appt was bright and early at 745. she had labs and then they did a cortisol level check and drew levels at 30 min and 60 minutes to see how her body is doing with it. Then I took the other 3 to a drop in day care in Arlington, which is a nicer area. they had a lot of fun and were there 6 hours! it was a good thing i took them there. We went at noon for her EGD and bone marrow biopsies/aspirates. we waited til 245 before they finally got to her. the procedures were done with at 4 and we waited around for another hour and she ate 2 packs of teddy grahams. :) she did great so they let us go. She wanted to go to olive garden so we did. she actually ate quite a bit of salad and alfredo. When we first got there, they took us to a table, and I asked if they had a booth but they said they couldn't do a highchair at a booth because it was a fire hazard. first time I had ever heard that. I cant even count how many restaraunts we have done that at. anyway, I said we would have to go somewhere else, because Gracie needed a soft seat and Von needed a high chair so he would stay put. :) She didnt offer any other options. so we were leaving and the manager said he had a table with soft seats and room for a high chair. i was a little annoyed with the first gal after such a long day, and her attitude about it. i doubt I am the first person needing something like that. they should know the options in my opinion. lol<br />the next day she had a hearing evaluation and she did really well. she hasnt had any change since last year. she has some hearing loss in high frequency but nothing that needs a hearing aid at this point. We are grateful to learn that the transplant didnt make it any worse than the previous chemo.<br /><br /><div><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEju_liqGu3amdBqn_LtiR8YsjKTlOPuNIAaSuUXmAPa9FNasMJ8HlWyGhSjomB5bj-OwK3nFBSc5o-xseiArp_qynaUjGo7JWAgiM7MZDMyllwSQmWj5QGmiqnLb3pDnpBiP4oKtBSabvI/s1600/Gracie+lost+1st+tooth+6-22-11.jpg"><img style="TEXT-ALIGN: center; MARGIN: 0px auto 10px; WIDTH: 298px; DISPLAY: block; HEIGHT: 400px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5621579094362922754" border="0" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEju_liqGu3amdBqn_LtiR8YsjKTlOPuNIAaSuUXmAPa9FNasMJ8HlWyGhSjomB5bj-OwK3nFBSc5o-xseiArp_qynaUjGo7JWAgiM7MZDMyllwSQmWj5QGmiqnLb3pDnpBiP4oKtBSabvI/s400/Gracie+lost+1st+tooth+6-22-11.jpg" /></a> Wednesday she had a CT scan and the MIBG injection. then we went to Mcdonalds and Gracie lost her 1st tooth eating chicken nuggets! she got a little freaked out at first, then started laughing. She said it hurt to eat after that, so we got her a vanilla milkshake.<br /><br /><br /><br /><div><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgpOz_nDg5Ao0NmEz0-UuKc5vNs7JE9NNVDC1bC3s6DpVX_v2_2LieCajNcDGcJUhgIgYu5MqdEjFRfAOj2Aqz-dCMH8TE-bYGy41fgk6ptI6K9Ew5rzxK4xCrTFU0r454Oxz5ZXQLYAKc/s1600/mibg+6-23-11.jpg"><img style="TEXT-ALIGN: center; MARGIN: 0px auto 10px; WIDTH: 299px; DISPLAY: block; HEIGHT: 400px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5621579094145006018" border="0" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgpOz_nDg5Ao0NmEz0-UuKc5vNs7JE9NNVDC1bC3s6DpVX_v2_2LieCajNcDGcJUhgIgYu5MqdEjFRfAOj2Aqz-dCMH8TE-bYGy41fgk6ptI6K9Ew5rzxK4xCrTFU0r454Oxz5ZXQLYAKc/s400/mibg+6-23-11.jpg" /></a> today was the MIBG scan, which shows 90% accuracy if there are any tumors. if there are tumors, they light up. we will get these results next monday. She has to lay still for 70 minutes and she always does so awesome. she fell asleep the last half hour. after that was done, we were able to hit the road and head home. The ride home, we stopped evry couple hours for lortab or ibuprofen, since those bone marrows sights were still very sore. other than that, it was great and we made it home is the usual amount of time. We go back down to clinic on Monday to review all of the test results with the Dr.<br /><br /><br /><br /><br /><br /><div></div></div></div>Unknownnoreply@blogger.com3