The low dose chemo is 2 kinds of chemo the first week, 1 kind of chemo the second week, and the 3rd week off. The first week we did in Ft. Worth so they could get a daily weight and better monitor her nutrition and health. She did fairly well with the first week and went from weighing 12.6 kg to 13.2. They let us come back to Tulsa for the rest of it and for the second round of it as well.
Brandon, my husband, was able to be there the whole week in Ft. Worth so it was fun to have it just be the three of us. We went to the movie one night, Olive Garden another night, the zoo, and some stores. just anything she felt like doing.
I love this shadowy picture of daddy and Gracie at the zoo. :)
The next week that we were home we spent a day at an amusement park nearby as a family, Gracie loved it and rode a lot of rides. It was great to see her have fun and not just sit on the sidelines.
Gracie recieved a wig from Http://www.childrenwithhairloss.us free of charge. She was SOOO excited, and had a huge grin on her face. She immediately asked for a brush to brush her hair. This website is different from other hair donation sites. They donate to all kids with hairloss, not just low income or those with permanent hairloss. I will definitely send my future hair donations to them and suggest you do as well, if you are ever donating.
A beautiful evening last week to spend time outside and draw with chalk.
Our original plan was that Gracie would be starting pre-K this year, and riding the bus with her big sister, but cancer came along with its own plan. We got her some workbooks for her to have "homeschool" and she enjoys working on her writing.
This picture is from today. Gracie just started the second round of the low dose chemo yesterday and she weighed 14.4 kg. which translates to 31.7 lbs :) she has gained 3.75 lbs in the last three weeks and we are thrilled. She is on the milk pump around the clock to gain weight and it looks like it is working. She doesnt feel like eating still, and if by a rare chance she does, it usually tastes bad and she spits it out. Im so grateful for that g button!! :)
taking a nap at clinic today.
amazing Gracie pins made by Beans Things. love "em!
Lisa,
ReplyDeleteI know we haven't seen each other since High School, but I want you to know that I think of you often. I am weeping over this post. She is an amazingly beautiful little angel. God has big plans for her. Just wait and see. You all will get past this unfortunate bump. You will all come out of this stronger than you could ever imagine. I can't even fathom the scare you must feel each day, nor can I fathom the tears that have been spilt on Gracie's behalf. Please know I keep you and your family in my thoughts and prayers.
Your friend,
Taunya Brown Boes
Gracie looks fabulous in her wig... continuing to pray :-)
ReplyDeleteIt had been a long time since your last post. I figured that no news is good news, and assumed you were all enjoying a healthier Gracie. :) I am so glad to read this wonderful update.
ReplyDeletePrayers and good thoughts continue to be sent your way.
-Victoria
It is great to hear about Gracie again. I know things have been busy with the start of school and the chemo rounds, but I really appreciate the update! I just know she'll be running around the halls of our school as a Kindergardener very soon! Prayers are still with you all!
ReplyDelete