Friday, June 3, 2011
Next weekend we are doing a lemonade stand to raise money for childhood cancer. check it out. http://www.alexslemonade.org/mypage/72583
So, once again, it has been a long time since I have updated the blog. We have been having a good time trying to create a new normal. It is nice to not have to be anywhere very often. Gracie is still on TPN for 12 hours every night for weight gain. She weighs 31.5 lbs now and is looking good. :) She is getting stronger and trying to be a regular kid. She is happy except when she's hurting and her appetite is hit and miss but she is improving. We have been going to the clinic in town for her labs once a week, and then they ship 7 days at a time of TPN. She will go down to FT worth MOnday for clinic there and then start her last 2 weeks of accutane!after that 2 weeks, she will have her scans.
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