My beautiful niece Gracie was recently diagnosed with Neuroblastoma (cancer). It is still early in the diagnosis and we are awaiting results to know more about the fight that Gracie will face. I've created this blog as an outlet for friends and family to stay informed about her journey and a way for friends and family to make anonymous contributions towards her care and the mounting expenses her family will face. Gracie is a fighter and the bravest 3 year old I know. Hundreds of people love you Gracie and are praying for you. "Be strong and of good courage for the Lord thy God is with thee" Joshua 1:9

Saturday, February 25, 2012

February Fun

We took a family trip to Colorado for skiing. Gracie hadn't been feeling very well a few days before, and decided to just play in the snow, and not ry skiing. no problem with me! I was perfectly happy to stay with her and Von. :) I only tried skiing once 10 years ago and i was very bad at it. maybe next year :) well, she loved the snow! We had a great time.
i love this picture of her laying in the snow, she was so happy and making a snow angel.
Gracie at her Kindergarten class valentine party.
Gracie and Chloe at the girl scout slumber under the sea. She wasn't feeling very well this day either, so she just stayed a couple hours.
Gracie had some back pain earlier on this month that was intense and lasted 8 straight days, it just went away after that. we had an MIBG scan done to check for neuroblastoma but it was clear, thankfully. then she has had random times of pain and puking. It seems to be related to the adrenal insufficiency. she does a lot better, once she gets the hydrocortisone. We go back for her 9 month scans next month.

December scans and Christmas

Gracie's hair is long enough for french braids. I'm not the best at it, but it is cute enough :) she loves it.
Gracie had a wonderful Christmas and was happy and healthy. She got a new baby and vanity, a play ironing table and lots of other fun stuff! We felt so blessed to be together as a family and everyone was healthy and happy.
We went down to Fort worth for her scan and Dr appointment. I took all the kids, since we had to stay overnight. We went to radiology at 8 am and she started the 2 hours of drinking the gatorade contrast. The other kids were all great waiting. They had to do an IV for the CT and they left it in for later that day for labs with the endocrine office. They were testing her cortisol levels. They came back as low but not too much. The doc said she didn't need daily hydrocortisone, but would need stress doses when she was sick. The CT scan was clear! It is always a huge relief, although we hadn't anticipated anything different since she is doing so well. :) We had the clinic appointment in the afternoon and made it back home around 10 pm.