Yesterday we woke up at 3:30 am and made the drive to Ft Worth for Gracie's 3 month clinic visit. We had missed the appointment a couple weeks ago, and this was the next they had. It was to do labs and review the scan results. We already knew the scan results since we had called them, but we went so they could see her, since it had been so long! They were all simply amazed at how great she looked! They said they would have never recognized her on the street! :) First thing, was the scale, and it said 16.4 kg! we have never seen a 16! that translates to 36.08 pounds!! She has gained almost 7 lbs in 4 months, and all on her own! She hasn't had any feeds since July. Her appetite is great and she is active and getting stronger every day. Then she got the poke for her labs and she didn't cry. She just said "I'm scared, I'm scared" The labs were all wonderful and normal. all the chemistries and everything. It had been too long to remember since seeing so many numbers in the middle of the paper where they should be! After Dr. Granger saw her, she asked if we wanted to take the g button out that day. I asked how do they do it, and she said they just pull it out. Gracie was nervous, and I kinda was too. But she did really well. Dr Scully, from surgery came over and pulled it out, and she screamed a little. Blood spurted out and food from her stomach, from the force, it was kinda shocking, then he put pressure on it. He said to not eat for an hour and the mucosal lining of the stomach would heal itself by then. amazing. He said to leave the bandage on for 3 days. She had had that button since last July! 15 months. She is truly a free woman now. It is a huge deal and we know we are so blessed. We thank God every day.
Wednesday, October 5, 2011
Last week, a package came in the mail from Gracie's wish granters, Ben and Natalie. Inside was a cinderella doll and a Disney yahtzee Jr game. Also a card saying that they were so excited for her wish for Disneyworld, and they had sent these gifts to add to the excitement as we start the countdown!! She was so excited to get the package.
Posted by Okie Bloxhams at 4:19 PM