My beautiful niece Gracie was recently diagnosed with Neuroblastoma (cancer). It is still early in the diagnosis and we are awaiting results to know more about the fight that Gracie will face. I've created this blog as an outlet for friends and family to stay informed about her journey and a way for friends and family to make anonymous contributions towards her care and the mounting expenses her family will face. Gracie is a fighter and the bravest 3 year old I know. Hundreds of people love you Gracie and are praying for you. "Be strong and of good courage for the Lord thy God is with thee" Joshua 1:9

Wednesday, October 5, 2011

Clinic

Yesterday we woke up at 3:30 am and made the drive to Ft Worth for Gracie's 3 month clinic visit. We had missed the appointment a couple weeks ago, and this was the next they had. It was to do labs and review the scan results. We already knew the scan results since we had called them, but we went so they could see her, since it had been so long! They were all simply amazed at how great she looked! They said they would have never recognized her on the street! :) First thing, was the scale, and it said 16.4 kg! we have never seen a 16! that translates to 36.08 pounds!! She has gained almost 7 lbs in 4 months, and all on her own! She hasn't had any feeds since July. Her appetite is great and she is active and getting stronger every day. Then she got the poke for her labs and she didn't cry. She just said "I'm scared, I'm scared" The labs were all wonderful and normal. all the chemistries and everything. It had been too long to remember since seeing so many numbers in the middle of the paper where they should be! After Dr. Granger saw her, she asked if we wanted to take the g button out that day. I asked how do they do it, and she said they just pull it out. Gracie was nervous, and I kinda was too. But she did really well. Dr Scully, from surgery came over and pulled it out, and she screamed a little. Blood spurted out and food from her stomach, from the force, it was kinda shocking, then he put pressure on it. He said to not eat for an hour and the mucosal lining of the stomach would heal itself by then. amazing. He said to leave the bandage on for 3 days. She had had that button since last July! 15 months. She is truly a free woman now. It is a huge deal and we know we are so blessed. We thank God every day.
Next adventure--Disneyworld!!

1 comment:

  1. Hurray for Gracie!! Hurray for your family!!

    ReplyDelete