It's been 3 years since the day they did an ultrasound and found the tumor. I can't help but remember that day and the shock, fear, and anxiety associated with it. It was one of the worst days of my LIFE! I say one of the worst, because there were too many awful days ahead that I didn't know how my heart could take it without literally breaking in bits. What an amazing child we have. I can hardly bear to even remember what she has been through. The hard part is that she remembers it all. If you think about it, she was almost 4 at the time and that is kinda where people start to remember things anyway. especially as tramatic as that. We are so proud of our Amazing Gracie and SO beyond blessed and grateful to have her still with us and doing so well!!!
I am still waiting to hear when her scan will be. They are waiting to get her old scans from TX and OK so they will be able to compare it with the old ones. We thank you for all your love and support these past 3 years. We are blessed to have you in our lives.
Friday, February 1, 2013
Gracie is doing well and is growing and happy! She had a great summer and started 1st grade in the fall. She absolutely loves it! and she is a great student. We have moved and recently just took her to meet her new oncologist here. He seemed very nice and I am waiting to hear about when her CT will be scheduled. (It will be sometime this month)
Gracie has had strep throat and a cold and cough this week so she stayed home from school. Every time she is sick at all, it makes her very tired because of her adrenal insufficiency (see: understanding-addisons-disease-) so when she is sick, she has to be on stress doses of hydrocortisone. She seems to be on the mend now, knock on wood. :)But please keep her in your prayers.
A sweet story from this week. She was asking why she had to take this yucky medicine and I told her it was from the cancer ruining her adrenal function so she needs to take it when she is sick. she said "So I have to take this all my life? and pay for this myself when I.m older!?" I was surprised she had put that all together, I said "yeah" then she said "and adopt babies?" I was caught off guard cause we hadn't talked about that in the recent past. I said "does that make you sad?" and she goes "Heck no!! Like I want to hurt ever again... or be in the hospital!!" She was laughing and I did too. I said "I never thought of it that way" She is too sweet and cute for words. She understands so much and always has been wiser than her years. We sure love her and are so grateful for her continued health and progress!!
I promise to post scan results as soon as we have them!!
Posted by Okie Bloxhams at 9:05 PM