My beautiful niece Gracie was recently diagnosed with Neuroblastoma (cancer). It is still early in the diagnosis and we are awaiting results to know more about the fight that Gracie will face. I've created this blog as an outlet for friends and family to stay informed about her journey and a way for friends and family to make anonymous contributions towards her care and the mounting expenses her family will face. Gracie is a fighter and the bravest 3 year old I know. Hundreds of people love you Gracie and are praying for you. "Be strong and of good courage for the Lord thy God is with thee" Joshua 1:9

Friday, July 23, 2010

Home

I wanted to repost these pics bigger since we are home now and i have a computer. :)
This is Gracie after surgery, she had 9 lines, after a couple days they took some out, but she had 2 new ones with the oxygen and the chest tube, so 11 all together throughout.


She managed to find her thumb after about 2 days, with all that stuff on her hand.

on the drive home.


We came home on tuesday. We left the PICU on monday and she stayed overnight on the surgery floor and they released her at 4 pm so we made it home at 9 pm. Brandon had to leave on saturday and I had a really frustrating time from sunday night on. I was really worked up over a jerky nurse she had sunday night. I never knew I was capable of being so angry. :) anyway, I dont even want to get into the story, i am trying to get over it. lol. we did get a new nurse, and that helped a lot. long story short. Ive never been talked to that way.
I hope I have sorta learned a lesson to not get worked up over stupid people and save my energy and emotions for what matters.
Gracie and I will head back to TX sunday so she can be there monday morning for her bone scan. she has scans all next week. Her birthday is also sunday so we are celebrating it tomorrow.

2 comments:

  1. My thoughts and prayers are with you and your family. I'm not sure if you know of Layla Grace foundation, but thought you might like the info.

    http://laylagrace.org/

    ReplyDelete
  2. Hope today's birthday party is awesome. Happy early birthday, Gracie!

    ReplyDelete