My beautiful niece Gracie was recently diagnosed with Neuroblastoma (cancer). It is still early in the diagnosis and we are awaiting results to know more about the fight that Gracie will face. I've created this blog as an outlet for friends and family to stay informed about her journey and a way for friends and family to make anonymous contributions towards her care and the mounting expenses her family will face. Gracie is a fighter and the bravest 3 year old I know. Hundreds of people love you Gracie and are praying for you. "Be strong and of good courage for the Lord thy God is with thee" Joshua 1:9

Saturday, August 28, 2010

Round 7 chemo (round 2 low dose chemo)

Gracie has started growing hair again. and eyebrows and eyelashes. :) she looks darling.
She started the second round of the low dose chemo on Monday. She did pretty well with it with only vomitting 1-2 times a day. She didnt gain any extra weight this week but is holding her weight, right around 31 lbs. I am on my own, so to speak, with the kids so I had people watch the baby this week while the older two were at school and Brandon was working. Im so grateful for everyone pitching in to help, and I hear he was a good boy, so that makes me happy too.

last night Gracie and cHloe had a sleepover here with the neighbor girls. Gracie got to take the night off from the milk pump and be a regular kid. I slept on the couch. In the middle of the night, I woke up and noticed her sleeping on her tummy with her bum in the air like she used to sleep. I bet she misses good sleep, the same as I do. She has to sit semi-upright every night while sleeping so she doesnt puke while her feeds are going. shes a tummy sleeper like her mama so it is annoying to her. I remember not getting to sleep on my tummy when pregnant and i hated it, so i can relate in that aspect somewhat. I felt so rested getting 6 straight hours of sleep last night! :) Tomorrow Brandons parents are coming and will stay a couple weeks. after, that, my parents will come. It has been nice having our own family time these past 4 weeks, but i am ready for the help again and we miss them. :)
Gracie has one more week of chemo, then the week of the 7th we will be back in ft worth for scans again, the scans have to be within 30 days of transplant, so we have to re do all of them but the audiogram. as soon as all the scan results are back and approved by insurance, she will start the stem cell transplant, probably sometime the week of the 14th. Im SO not looking forward to it, but SO ready to have it over and done with.

4 comments:

  1. Excellent! Will the stem cell transplant be rough on her?

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  2. I just read up on stem cell transplantation. You are right, it looks like it could potentially be quite rough on her. However, the information that I read (via the Mayo Clinic) stated that "some people sail through stem cell transplantation with few side effects and complications." I pray that Gracie falls into that category. Prayers & good vibes continue to be sent to all of you.

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  3. I'm so happy she got to have a sleepover and regular tummy sleep! Love that dark hair and eyelashes!

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