The home health people came and showed me how to do the pump for the night feeds. we started out at 60 ml/hr (2 oz) and now we are at 80 ml/hr for 12 hours. so she gets a good amount of calories just sleeping. She is still pretty sore where the G button is. It takes 4-6 weeks to heal and it hasnt been quite 2. She is a good sport. It is nice that she can take her oral meds through the tube now too. That part makes her very happy. :) She is starting to slowly gain some weight back and is now up to 28.5 lbs as of today. She seems to be getting some strength and energy back as well. She was up walking around yesterday and even crawled up the stairs to play in the playroom. I was looking all over for her and then my other daughter said "she's up here!" i said "who brought her up there?" and she said that she crawled up on her own. It made me nervous that she was doing that but also very happy that she is feeling well enough to play again.
We have been hammered with thunderstorms this last week and we decided it was a perfect day for play dough. not that she plays outside but she has been wanting to take rides in the car to walmart or anywhere so we were stuck at home for a couple days.
Tonight Grandpa and Grandma took us out to Incredible Pizza. It was a lot of fun and it was great to see some some smiles from miss Gracie before we head back in for chemo in the morning. This will be round 4 of 5. surgery to resect the tumor will be in between 4 and 5 probably the week of June 7th. That will be done down in Ft. Worth.