My beautiful niece Gracie was recently diagnosed with Neuroblastoma (cancer). It is still early in the diagnosis and we are awaiting results to know more about the fight that Gracie will face. I've created this blog as an outlet for friends and family to stay informed about her journey and a way for friends and family to make anonymous contributions towards her care and the mounting expenses her family will face. Gracie is a fighter and the bravest 3 year old I know. Hundreds of people love you Gracie and are praying for you. "Be strong and of good courage for the Lord thy God is with thee" Joshua 1:9

Monday, May 3, 2010

In need of nutrition

We brought Gracie home Thursday night after chemo and she never really got her appetite back and was puking a lot. She started puking up everything she drank and yesterday we brought her back up to the hospital. She is down to 24.2 lbs. She will be 4 in July and she weighs 5 lbs less than my 14 month old baby. :( it makes me so sad to see her disappearing before my eyes. The doc came in today and said they are going to start Gracie on TPN again (IV nutrition) and they will talk to surgery about putting in a G button. She is also getting another transfusion today. Please keep her in your prayers. She is down 25% in weight from when she was first diagnosed 2 months ago and even then, she was underweight. :( My sister in law said that nobody can truly know how awful she looks until they see her in person. The pictures just don't convey the extent of it. We appreciate all the support from friends and family, my mother in law and sister in law were here last week and month and my mom is on her way tomorrow to spend this month. Tonight is the first night we have had to ask neighbors to watch the other kids because we have had family or Brandon able to be with them.
I am so grateful for that.

2 comments:

  1. I'm pulling for you, Gracie pie. Prayers and wishes and good vibes being sent your way continuously.

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  2. My prayers continue for healing, comfort and gratitude for things such as IV nutrition when necessary among other things. Too bad there is no such thing as a fat harvest! I have so much to give to you poor Gracie Girl! Much love. Let me know if you need help with the kids. Chris or I are usually home. We don't mind having them.

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