Gracie was able to get extubated this morning and she was so relieved. The first words out of her mouth were "pepsi. pepsi. pepsi." she had been mouthing the word for the past 5 days and also apple juice and water. She got some little sips and did really well with it and had a lot of drinks throughout the day. They started back her milk feeds at 5 ml an hour and she is tolerating it so far.
her blood pressure has been high and they think it is from all the hydrocortisone they have been giving her so they are weaning her down on that and giving blood pressure meds in the meantime.
She was able to get radiation today and will have the last session tomorrow. She did really well as always even though today she was hurting.
She finally started peeing out a lot of the extra fluid and they were worried it would make her sodium go way up like it usually does. they tested it and it was fine so they let her keep peeing it off. they tested a few hours later and it was still ok.
I came home to sleep tonight and Brandon is staying with her. we are trading off nights. we are so thankful that she is off the vent and breathing well on her own. We thank you for all of your prayers and ask you to continue them as we know they are what helps the most! She isnt out of the woods yet by any means but she had a pretty ok day considering all.