My beautiful niece Gracie was recently diagnosed with Neuroblastoma (cancer). It is still early in the diagnosis and we are awaiting results to know more about the fight that Gracie will face. I've created this blog as an outlet for friends and family to stay informed about her journey and a way for friends and family to make anonymous contributions towards her care and the mounting expenses her family will face. Gracie is a fighter and the bravest 3 year old I know. Hundreds of people love you Gracie and are praying for you. "Be strong and of good courage for the Lord thy God is with thee" Joshua 1:9

Thursday, December 9, 2010

Extubated!

Gracie was able to get extubated this morning and she was so relieved. The first words out of her mouth were "pepsi. pepsi. pepsi." she had been mouthing the word for the past 5 days and also apple juice and water. She got some little sips and did really well with it and had a lot of drinks throughout the day. They started back her milk feeds at 5 ml an hour and she is tolerating it so far.
her blood pressure has been high and they think it is from all the hydrocortisone they have been giving her so they are weaning her down on that and giving blood pressure meds in the meantime.
She was able to get radiation today and will have the last session tomorrow. She did really well as always even though today she was hurting.
She finally started peeing out a lot of the extra fluid and they were worried it would make her sodium go way up like it usually does. they tested it and it was fine so they let her keep peeing it off. they tested a few hours later and it was still ok.
I came home to sleep tonight and Brandon is staying with her. we are trading off nights. we are so thankful that she is off the vent and breathing well on her own. We thank you for all of your prayers and ask you to continue them as we know they are what helps the most! She isnt out of the woods yet by any means but she had a pretty ok day considering all.

3 comments:

  1. That is such great news. Praying that she continues to improve. Love you.

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  2. Wooo-hooo! Sounds like you guys had a great day. :) So, today is her last round of radiation? That is awesome!

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  3. You don't know me, but I'm friends with Amanda and have been following your blog since day one. I was so happy to read Gracie's good news...I hope things are still moving in a positive direction! My prayers are with you every day!!!

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