My beautiful niece Gracie was recently diagnosed with Neuroblastoma (cancer). It is still early in the diagnosis and we are awaiting results to know more about the fight that Gracie will face. I've created this blog as an outlet for friends and family to stay informed about her journey and a way for friends and family to make anonymous contributions towards her care and the mounting expenses her family will face. Gracie is a fighter and the bravest 3 year old I know. Hundreds of people love you Gracie and are praying for you. "Be strong and of good courage for the Lord thy God is with thee" Joshua 1:9

Monday, December 6, 2010

Pseudomonas sepsis

bipap
intubated


The blood cultures all came back positive as pseudomonas sepsis. They started her on oxygen Friday night because she was having a rough time breathing. Her belly is distended because of the fluid in her belly. this is because of the infection, she also has DIC. http://emedicine.medscape.com/article/779097-overview
DIC stands for Disseminated intravascular coagulation.
Saturday night they started her on bipap to help her breath but she kept pulling it off and they just did a high flow nasal oxygen. Sunday they did surgery to remove her port and central lines because they were the source of the infection. She had platelets 3 times and also plasma and did good during surgery without any clotting problems. They also started her on lasix to try to get her to pee out some of the added fluid. She is weaned off the levophed and coming down off the dopamine also. {for blood pressure}
They kept her sedated and intubabted all yesterday and all night last night to let her body rest. She had a rough few days of really working hard to breathe and got little sleep because of it.
Thank you everyone for fasting yesterday and for praying always. we cant tell you how much it means to us!!!

1 comment:

  1. A friend of mine from oregon sent me your blog site. She said she was friends with Daphane. My son also has stage IV Neuroblastoma (diagnosed at 5 on 10-30-2009, right adrinal gland)We have finished all of the planed treatment (Chemo, BMT, radiation, antibodies,& retnoic aid)Our Ethan has done amazing well, and if you need someone to talk to I would love too. I know there are not many of us nueroblastoma moms out there. You can contact me at shantiellmendenhall@hotmail.com, or follow Ethan's treatment at www.caringbridge.org/visit/ethanmendenhall
    I pray that Graie and your family will be strong and hopeful. I know you know, as well as I do, that God pours out both big and small mirales to these littel warriors.
    All of our love and understanding,
    Shantiell Mendenhall

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