My beautiful niece Gracie was recently diagnosed with Neuroblastoma (cancer). It is still early in the diagnosis and we are awaiting results to know more about the fight that Gracie will face. I've created this blog as an outlet for friends and family to stay informed about her journey and a way for friends and family to make anonymous contributions towards her care and the mounting expenses her family will face. Gracie is a fighter and the bravest 3 year old I know. Hundreds of people love you Gracie and are praying for you. "Be strong and of good courage for the Lord thy God is with thee" Joshua 1:9

Monday, March 28, 2011

Round 4 day 1

We got here last night at 8:45 and get all checked in and settled into bed. She finished up her accutane last night and also her last dose of hydrocortisone that she had been weaning off of the last 6 weeks. She did well all night with the feeds at 60. They started the IL-2 at 9 this morning and it will run for 96 hours. She did great all day with everything. She only needed lortab once this evening and she has been resting and sleeping well and pretty happy. :) I'm glad the first week is the "easy" week because next week, Brandon will be able to come after work since he will be working in Dallas. I had a really hard time with round 2s second week and it gives me comfort to know he will be around some of the time. Gracie Hasn't been gaining weight even though she has been tolerating her feeds at 60, we are trying them at 70 tonight and hopefully she will do well with it and we can increase more soon. They are testing for malabsorption although they don't really think that's the issue, we will see. They will give TPN through the IV for a few days, in addition to the milk feeds to see if we can get some leeway. Thank you for your prayer as always! Xoxo

No comments:

Post a Comment