My beautiful niece Gracie was recently diagnosed with Neuroblastoma (cancer). It is still early in the diagnosis and we are awaiting results to know more about the fight that Gracie will face. I've created this blog as an outlet for friends and family to stay informed about her journey and a way for friends and family to make anonymous contributions towards her care and the mounting expenses her family will face. Gracie is a fighter and the bravest 3 year old I know. Hundreds of people love you Gracie and are praying for you. "Be strong and of good courage for the Lord thy God is with thee" Joshua 1:9

Wednesday, September 14, 2011

3 month follow up scans

Gracie started Daisy scouts last week and she loved it! She keeps saying "scouts is fun!" She is so excited to go again this week!

Gracie's hair is growing so fast! and it is long enough for little pigtails again. She is looking so grown up. We drove down to Ft Worth yesterday and left at 5 am. got there at 10 and checked in. They had her start with the gatorade drink that has the contrast in it. she is supposed to drink it a little at a time for 2 hours. This is where the G button comes in very very handy! I just hook er up to the tube and she doesnt even have to drink any of it. :) then they were running late, so they didn't call her back til 1:45 and then they did an IV for the IV contrast, which I had forgotten about since every other time, she had a port or central line. She was not happy about it at all but she held still through the tears. Once that was done, we waited another 1/2 hour and then it was finally her turn. She held real still for the CT and it was very quick. After it was done, she got the IV out and we went to eat. It was about 3:00 and we were starving. I never eat when she can't eat. She wanted one of everything it seemed. we got, pizza, turkey, loaded baked potato, doritos and candy bars to share. Aftere that we went to the Build-a-bear at the hspital. Cook Children's is the first hospital to get one and it is great. I was just going to let her get an animal without an outfit, but that was before the IV i didn't know about. :) lol so she got a much deserved dress to go on her new bunny, named "bunny" haha. We stopped back by radiology to get a copy of the scan and then headed home. We got home around 8:45. I gave the Cd to Brandon to look at and he said he didn't see anything as far as he could tell, and there wasn't a report yet. So today I called and asked if the report was done and it was. The results? NO evidence of disease!! We are so very blessed that She remains disease free and she is healthy and strong. Most days she doesn't even need tylenol. Thank you all for your continued prayers. We love and appreciate you so much! We will go down for clinic on Monday, so glad we don't have to wait til then for the results. She will just have labs and visit with the doctor.


3 comments:

  1. Oh, I am soooo happy for you! Little Gracie is such a beautiful girl. I have to tell you, Emma is working on a little something for Gracie...in honor of her newly grown hair.

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  2. <3! What great news. :) FYI: I work for the Girl Scouts (of Kansas Heartland). Feel free to let me know if you guys need anything (patches, pins, etc.).

    -v

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  3. Such great news!!! I love her pigtails! Her hair is growing back in so quickly.

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