they started the IL-2 around 9 am yesterday and the ch14-18 at 11. She went and played in the playroom for quite a while until she got a headache. her headache lasted all day and was very intense. It was awful and much worse than round 1. Other than that she was doing ok. Around 7 pm her blood pressure started to drop and her o2 sat was 84 so they put her on the nasal canula of oxygen and stopped the infusions. She also had a high fever so they drew cultures, even though fever is a side effect of the antibodies. She got 3 saline boluses and it wasn't helping the blood pressure so they gave her some albumin and it started coming up throughout the night. She was puking and in a lot of pain all over. it was a very long night and we are both grumpy and tired today. This morning they started the ch14-18 at 11:00 at the half rate and had it run alone for 2 hours, then started the IL-2 at 1. So far it is going ok today. Knock on wood.
I hate this! I know it is such a blessing to have this option now that they didn't have 10 or 20 years ago. I have to keep reminding myself how worth it this all is. It is exhausting though. Thank you all for your prayers and please pray extra hard this week that her pain will be minimal and her blood pressure will be ok. Xoxo