My beautiful niece Gracie was recently diagnosed with Neuroblastoma (cancer). It is still early in the diagnosis and we are awaiting results to know more about the fight that Gracie will face. I've created this blog as an outlet for friends and family to stay informed about her journey and a way for friends and family to make anonymous contributions towards her care and the mounting expenses her family will face. Gracie is a fighter and the bravest 3 year old I know. Hundreds of people love you Gracie and are praying for you. "Be strong and of good courage for the Lord thy God is with thee" Joshua 1:9

Wednesday, February 16, 2011

home again :)

Gracie and her new friend Briley making heart shaped pizzas. Please include Briley in your prayers! She has leukemia and is 3 years old.

last monday before her headache started. i love this picture, she just looks so darn sweet! Tuesday went better and then wednesday she ran into more issues with blood pressure and headaches and oxygen. they turned both the IL-2 and ch14.18 off until thursday morning and kept them both at 5 ml per hour for the last 24 hours. I was soooo beyond ready to get out of there on friday!! (Gracie too) it was a long three weeks. we left around 1:00 pm and made it home at 6. it was so good to see the other kids again and Brandon! Von gave me a huge hug but then he really didnt hang on me much since then. It was bitter sweet. I was glad he was ok but sad he didnt miss me more :) He has done a lot of growing up. he will be 2 in 2 more weeks! Grandpa and Grandma Bloxham came friday night and stayed til yesterday. It was wonderful to have them here! We went back down for clinic on monday. we left at 3:15 am for an 8:45 appt. and then made it back home by 3:30 pm. it was a long day but glad to get it over with. all of her counts were good and we dont have to go back til the 3rd of March for her next check prior to round 3 on March 6. We are so happy for the 3 week break. knock on wood!! please pray she will stay well in between rounds and we can enjoy this time at home. She has had a lot of pain since leaving on friday and also her eyes are still dialated from the ch14.18. they said it should go away after a day or two but it has been 5 already. also please pray for her appetite to pick up and that she can gain weight. thank you so much!! we love you all

1 comment:

  1. It's good for Gracie, I think, that she has a friend more her age who is going through similar things.