My beautiful niece Gracie was recently diagnosed with Neuroblastoma (cancer). It is still early in the diagnosis and we are awaiting results to know more about the fight that Gracie will face. I've created this blog as an outlet for friends and family to stay informed about her journey and a way for friends and family to make anonymous contributions towards her care and the mounting expenses her family will face. Gracie is a fighter and the bravest 3 year old I know. Hundreds of people love you Gracie and are praying for you. "Be strong and of good courage for the Lord thy God is with thee" Joshua 1:9

Sunday, April 10, 2011

Home again!

Thursday afternoon, her arm started swelling up from the IV and hurting a lot. it was red and puffy and she was screaming from the pain saying "I can't take it!" it was cute and sad at the same time. They stopped the antibiotics and took the IV out. all of her blood cultures were negative anyway, so she didnt really even need them at that point. She was so glad to get it out. Thursday and friday went ok as far as pain but she still had some puking. Friday we left around 3 and headed home. It was soo good to get back home after 2 weeks. Von just hugged me so tight and cried and cried for about 10 minutes. poor kiddo. He hasn't wanted me to leave his sight, until just today. Tomorrow we will drive back down for clinic and then we will start her 2 weeks of accutane and also some TPN at night at home, along with the milk feeds. They also want to try adding a tsp of canola oil before the feeds to give her extra calories. we will see if she tolerates it. all in all it was a much better round than the 2 weeks of round 2, so we are grateful for that! also grateful she only has one more week in the hospital for round 5. the end is finally in sight and Gracie is happy and doing ok. please continue for her to gain weight and strength! xoxo

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