My beautiful niece Gracie was recently diagnosed with Neuroblastoma (cancer). It is still early in the diagnosis and we are awaiting results to know more about the fight that Gracie will face. I've created this blog as an outlet for friends and family to stay informed about her journey and a way for friends and family to make anonymous contributions towards her care and the mounting expenses her family will face. Gracie is a fighter and the bravest 3 year old I know. Hundreds of people love you Gracie and are praying for you. "Be strong and of good courage for the Lord thy God is with thee" Joshua 1:9

Thursday, October 7, 2010

Day +13

I had a great time at home with my other kiddos. Gracie and daddy had a pretty good time here at the hospital. She has been talking his ear off the last couple days and he even had her laughing. Her white count is up!! Her strength and energy are coming back. Her mouth is still bad but much better than it was, so at least she can talk again!
Last night they moved her to a bigger room. It is easily twice as big, with its own playroom. It is great!! She immediately wanted to go play at the table in the play area. She has a lot of puzzles and crafts and coloring things that people have sent her. Thank you!!! She keeps beating daddy at e memory game, but she plays by her own set of rules!! Haha.
This morning she wanted to go over again and play. It is great for her cause she walks over there and back and is sitting up while she is over there. She got pretty tired after about 40 minutes but I'm sure she will go again later and just get stronger and stronger! I wish all of the rooms were this big, the difference is apparent already in her mood and her desire to get up and do things, it is great for her healing. But this is the only one this big cause its on the corner and wraps around. Too bad. I wish all the kids had one.
Gracie is still puking a few times a day so she is still on the TPN. I'm not sure when they will try the milk feeds again. Her heart rate is down to about 110 and her blood pressure is good. Her diabetes insipidus is being managed pretty well with the new doc. He is the one we had the last day after her surgery and I was impressed with him. I think he knows his stuff.
Brandon will fly back home today for work. It has been good that he could come these few times. Next weekend my parents are bringing the other kids down to visit. Gracie is so excited. She said she needs to lock her new tinker bell diary before her brothers come. Lol
Thanks SOOOOOO much for all the prayers!!!!! The Lord truly hears them and blesses us.

1 comment:

  1. Oh my word! HILARIOIUS!!! She definitely should lock her Tinkerbell diary so her brothers won't look in it. That is ADORABLE! Those darn brothers anyway! They must all be the same. What a sweet little angel you and Brandon have. She's so precious. I'm so glad to hear that she has a big room to play. How fun is that? Glad to hear her mouth is getting better. I'm sure daddy didn't mind at all getting his ear talked off. That's awesome! Prayers are continuing your behalf... Take care!