My beautiful niece Gracie was recently diagnosed with Neuroblastoma (cancer). It is still early in the diagnosis and we are awaiting results to know more about the fight that Gracie will face. I've created this blog as an outlet for friends and family to stay informed about her journey and a way for friends and family to make anonymous contributions towards her care and the mounting expenses her family will face. Gracie is a fighter and the bravest 3 year old I know. Hundreds of people love you Gracie and are praying for you. "Be strong and of good courage for the Lord thy God is with thee" Joshua 1:9

Monday, October 25, 2010

Day +31 and Doing good :)

We got home last thursday ( the 21st) and there was a welcome home party waiting, with daddy, and grandma and grandpa, and her brothers and sister. She had asked for a pinata so there was a fun princess one that daddy had bought. She was SOOOOO excited to be back home. it had been 6 weeks since she left home.
Gracie is doing so well and talking and laughing and running and playing. She still takes one or two naps a day but she is getting stronger every day. im so happy to see her play and be active but i dont want her burning calories at the same time! :)
Her feeds are going pretty well. i have it at 40 ml/hr at night and then 4 bolus feeds each day of 120. she still has random times of pain and puking but it is much improved overall/
Today we went to the clinic here and everyone was so happy to see her walking!!! and happy and talkative. Her counts were good today. tomorrow she goes for a dental exam to see how long it will take to fix all her cavities. then we have the rest of the week "off" from doctors. I am waiting to hear when radiation will start. hopefully in the next couple weeks.
My mom and dad left today and it was my first time alone in a long time. lol i took gracie and von to walmart this morning arond 9:30 and Von (20 months) was really whiney. i thought that was weird since it was too early to need a nap. then we passed the food and he really freaked out, then i realized i didnt feed the poor kid breakfast!!! all i had given him was juice while i was getting gracies meds ready. totally spaced breakfast. LOL. im used to gracie and she doesnt eat anything. haha, it will take some getting used to all over again. heck, i dont even really know what he likes to eat! good thing he is forgiving. :) I bought some bananas and he scarfed it down in no time.
Gracie is starting to eat a little bit here and there but most food still tastes really bad because of the mucositis. She did eat a little lasagne tonight. hopefully it will get better and better.
The new carpet and paint looks great and Brandon and my parents worked really hard to clean the house and im so grateful, now i just need to keep on top of it! wish me luck
:)

glad to be home. :)

2 comments:

  1. I am so happy that you are all home and she is doing good. I love the not getting breakfast story, too funny. YOu are all doing an amazing job. And, hello, Shad looks so old and big!!!!

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  2. You are doing great, Lisa. I am so glad that you are all home and together.

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