My beautiful niece Gracie was recently diagnosed with Neuroblastoma (cancer). It is still early in the diagnosis and we are awaiting results to know more about the fight that Gracie will face. I've created this blog as an outlet for friends and family to stay informed about her journey and a way for friends and family to make anonymous contributions towards her care and the mounting expenses her family will face. Gracie is a fighter and the bravest 3 year old I know. Hundreds of people love you Gracie and are praying for you. "Be strong and of good courage for the Lord thy God is with thee" Joshua 1:9

Thursday, November 18, 2010

HOME again

We got to come home yesterday!!
Gracie had a good week at the hospital. She was off the IV fluids and just doing everything the way we would at home with medicines and feeds. She was happy and walking around a lot and she went to the playroom every time they opened it up. I really wish we could have just been at home the last week but I understand them wanting to watch her closer. Just grateful she did so well and the antibiotics worked so quickly. It was scary in the beginning and it could've easily been worse. We are blessed. Also so blessed to have Shayla here to help with the kids. She will fly back tomorrow. :(
Today Gracie started radiation therapy and she did so good!! She layed really still and didnt cry or complain. I am usually able to stay in the room for her scans or hold her hand even but with radiation, nobody can be in the room. I thought there might be some tears but she was amazing. She layed there for about a half hour while they did the x rays and lined her up to match the CT scan. the actual radiation part was very quick. They said they only have to do the x rays the first day so every other time will be very fast. She has 9 more days of radiation therapy and then we will head back to FT Worth for more scans before starting the antibodies therapy.
The next 5 days I will give her the rest of her antibiotics through the IV at home. They switched it to once a day instead of 3 and I gave her the first dose today. It was very easy. I dont know why there was such a big deal about doing it at home in the first place but I am just glad we had Shayla here to help so we were able to stay for as long as they wanted. :)

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