My beautiful niece Gracie was recently diagnosed with Neuroblastoma (cancer). It is still early in the diagnosis and we are awaiting results to know more about the fight that Gracie will face. I've created this blog as an outlet for friends and family to stay informed about her journey and a way for friends and family to make anonymous contributions towards her care and the mounting expenses her family will face. Gracie is a fighter and the bravest 3 year old I know. Hundreds of people love you Gracie and are praying for you. "Be strong and of good courage for the Lord thy God is with thee" Joshua 1:9

Monday, January 3, 2011

Ch14.18 course 1

We got to the hospital last night around 8 and checked into room 3005. We slept ok until around 7:30 when Gracie puked. She had been drinking a lot of water and also coughing. I told them she needed her ddavp but it was only ordered nightly instead of as needed. She finally got some around noon. The infusion started at 9 and she puked again shortly thereafter. She had also been given benadryl and Tylenol prior, and had been drinking a lot still, so it's kinda hard to say what it was from, maybe just all of it together. They alsostarted her on a continuous morphine pump for the pain.
The first couple of hours she did really well and no problems, then around 11 she got an excrutiating headache and was in so much pain, also pain in her legs. They gave her two seprrate morphine boluses on top of the continuous and she was still in a great deal of pain for at least a couple hours. After that she rested pretty well through the afternoon and woke up with a fever and more headache pain. She has been asking for a cold cloth for her head but I keep having to change it since she is so hot. She got some Tylenol after spiking her fever at 38.5 c and then puked about 20 minutes later. I think she must have puked upthe Tylenol also since her fever is up to 39.2. The infusion is almost complete for today. They run it at 5 ml/hr for thirty minutes and then 10 ml/hr for 10 hours. If her blood pressure gets too low, they will stop the infusion for a few hours nd treat the low blood pressure before starting up again. Luckily today has been ok as far as blood pressure goes and she was able to get it done in the 11 hours.
She is pretty sad about being here and misses her sister very much! I'm hoping he rest of the week goes well and she won't be in so much pain, or puking. Of course it could be much worse, obviously, but it still sucks watching her suffer. I'm glad she can rest some. Hopefully tonight will be good on her :)

1 comment:

  1. Loads of prayers always going your way. Please let us know if there is anything that any of us can do to help you or your family out at all, Lisa.