Saturday, September 25, 2010
We didn't get much sleep last night cause she was puking a lot and in a lot of pain as well. her mouth and throat are bright red and raw and very painful, especially when she has to do her mouth care. I about started crying this morning watching her tremble in pain and still willingly open her mouth without a fight to do her mouth care.
I went and took a nap at the Ronald McDonald house when Brandon got here his morning, he slept there last night. I wish they would let both parents stay with her at night but I guess it's good for one of us to get rest. It seems he got here just in time for the worst of it and I know I would be so exhausted doing it all alone, I am so grateful he can be here.
Today they increased her pain pump doses and she is resting well for the last couple hours. they will try her food pump again and see if she tolerates it at all. If not they will start TPN tomorrow.
Posted by Okie Bloxhams at 1:29 PM