Thursday, September 30, 2010
They are taking the sodium out of her TPN as well and hopefully it will get back to normal. They think she was probably just getting dehydrated. Stupid diabetes inspidus.
They gave her some medicine for itching cause of her dry peeling skin. Her mouth is horrific. I can't even describe it as hamburger, I don't have words for it, just that I am SO glad for pain medicine!!! Poor sweet baby.
The doctor and nurse were raving about her and what a good patient she is. They said "seriously, she is so good about everything, she never complains and she is amazing." I said I hear that a lot :) but I don't even have to hear it to know. She is patient and sweet and close to perfect ( in my eyes) :) I cant imagine how mean and grumpy I would be if I went through what she does. I hear all the kids screaming at all hours of the day and night and that is normal! It breaks my heart for all of their suffering. Please pray for all of them and all the children affected with cancer and illness. God bless them.
Posted by Okie Bloxhams at 9:40 AM