My beautiful niece Gracie was recently diagnosed with Neuroblastoma (cancer). It is still early in the diagnosis and we are awaiting results to know more about the fight that Gracie will face. I've created this blog as an outlet for friends and family to stay informed about her journey and a way for friends and family to make anonymous contributions towards her care and the mounting expenses her family will face. Gracie is a fighter and the bravest 3 year old I know. Hundreds of people love you Gracie and are praying for you. "Be strong and of good courage for the Lord thy God is with thee" Joshua 1:9

Monday, September 20, 2010

Day -4

Yesterday and today have been relatively boring, so that is good in this case! She has had a few episodes of nausea and vomiting but otherwise happy. Her bones have started to hurt and her central line site hurts a lot. She is on a lot of preventive pain meeds to get a head start on the pain that is to come. At home she took methadone every day. 1 mg twice a day. Now she is taking 2 mg 3 times a day and still asks for morphine about 3-4 times a day, that can give you an idea of her pain so far.
Overall, she looks good and is fairly happy. She hasn't had another dose of ddavp, because her sodiums have been steady at 142. They are doing good with monitoring her urine output and adjusting her iv fluids accordingly every four hours. This seems to do the trick and she isn't as thirsty either. The only downside is her peeing every 30-60 minutes around the clock. Only 27 more hours of chemotherapy to go and then we can get a more normal schedule for that.
We've been watching a lot of tv and there are a ton of toy commercials on, and almost everyone, she says she wants it! Lol. Or if it's for boys she will say " maybe Shad would want that" or " do you think you should get that for baby Von?" and the fashion Barbie every time she tells me Chloe wants it for Christmas. She sure is sweet. She misses her daddy a lot and asks for him several times a day. Next most would be her sister Chloe. Chloe is such a good sister to her and so sweet to her.

3 comments:

  1. It sounds like you have such a sweet and loving family. Glad to hear that things are boring around there!

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  2. Gracie is truly amazing. I don't think I could still be happy after going through all that she has. It brightens my day to hear about her. She is in my prayers.

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  3. Yes...the count down is on. 27 hours, YOU CAN DO THIS!!!!

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