Gracie has had a rough couple days. She got platelets yesterday and again this morning. They want to keep her platelets above 50 because she has had blood in her vomit from the severe mucositis. she is still puking quite a bit and in pain. Most of her pain is from her raw mouth and digestive tract. (from mucositis) she also has a lot of pain in her chest by her new double lumen line. her mouth really does look like raw hamburger. Her cheeks look like a chipmunk from being so swollen and she can hardly open her mouth. She has stopped talking cause it just hurts too much. She just uses hand gestures. The doc says this is pretty well expected and it will get worse around day 7. Worse!!! Ugh. She is on a lot of morphine and pretty doped up. She continues to amaze us and all around her with her courage and perseverance. She is an angel. Please pray for her pain to be less and for her mouth to get better sooner than later. It has been a rough few days and I am so grateful my husband was here with us.
Brandon leaves tomorrow for the week and will be back Sunday. Today I slept in till 11 am at the Ronald McDonald house and then he sent me to get pampered with a new haircut and highlights. It took 5 hours! It was a much needed break and I feel refreshed to go about the next 5 days alone. I also had the chance to relax yesterday and paint a canvas at the Ronald McDonald house. It was the first time I had tried painting on canvas and it was fun. I'd love to keep trying it.